COVID-19 and children with cancer: Parents' experiences, anxieties and support needs.

Pediatric Blood & Cancer
A.-S. DarlingtonB. Phillips

Abstract

Children with cancer were designated as clinically extremely vulnerable if they were to contract SARS-CoV-2 due to immune suppression in the early phase of the COVID-19 pandemic. Our aim was to explore experiences, information and support needs, and decision making of parents with a child with cancer in response to this phase in the United Kingdom. Parents of a child with cancer completed a survey at a time when the UK moved into a period of 'lockdown'. An online survey was developed by the research team to capture parents' experiences, information and support needs, and decision making, using closed statements and open text boxes. Descriptive quantitative analyses and qualitative thematic content analysis were undertaken. One hundred seventy-one parents/caregivers completed the survey. Eighty-five percent were worried about the virus and they were vigilant about the virus (92%) or cancer symptoms (93.4%). For two-thirds (69.6%), hospital was no longer considered a safe place. Eight overarching themes were identified related to the virus: (a) risk of infection; (b) information, guidance and advice; (c) health care provision; (d) fears and anxieties; or related to lockdown/isolation: (e) psychological and social impact; (f) keep...Continue Reading

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Citations

Jan 14, 2021·Child's Nervous System : ChNS : Official Journal of the International Society for Pediatric Neurosurgery·Annarita AdduciMaura Massimino
Feb 10, 2021·Journal of Human Nutrition and Dietetics : the Official Journal of the British Dietetic Association·Luise V MarinoRobert Mark Beattie
Apr 23, 2021·Journal of Psychosocial Oncology·Lori WienerBarbara Jones
May 4, 2021·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Gözde ÖnalMeral Huri
Jun 18, 2021·Pediatric Pulmonology·Nicole CollaçoAnne-Sophie Darlington
Jul 11, 2021·Cancer Reports·Andreas MerykRoman Crazzolara
Aug 3, 2021·Frontiers in Cell and Developmental Biology·Anem IftikharIan Ellis
Jul 20, 2021·World Journal for Pediatric & Congenital Heart Surgery·L V MarinoAnne-Sophie E Darlington
Aug 2, 2021·Journal of Pain and Symptom Management·Leah J BeightJoanne Wolfe
Oct 10, 2021·Pediatric Blood & Cancer·Maria C McCarthyCinzia R De Luca

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Software Mentioned

Statistical Package for Social Science ( SPSS )

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