Creating a caregiver program in neuro-oncology

Neuro-oncology Practice
Margaretta S Page, Susan M Chang

Abstract

Neuro-oncology caregivers face unique challenges. Caring for a patient who has a catastrophic, life-threatening diagnosis combined with progressive neurological decline can produce great distress. Experts agree that a formalized plan of care to address the needs of the neuro-oncology caregiver is needed. In 2013, the Division of Neuro-Oncology at the University of California, San Francisco initiated a program designed to provide additional services to address the needs of the neuro-oncology caregiver. Records have been kept outlining program development, the caregivers seen, their identified needs, and services provided. From October 2013 through August 2015 staff met with 334 "new to clinic" caregivers, 90 of whom were caring for patients with newly diagnosed glioblastoma. One hundred ninety-eight caregivers were deemed at high risk for distress due to transitions in patient care that were occurring. One hundred forty-nine caregivers of former patients received bereavement services for up to 6 months. The areas of highest need were emotional support and advocacy issues. The number of caregiver needs increased as patients moved along the disease trajectory. The program was able to identify resources that were lacking. Dedicated...Continue Reading

References

Nov 1, 1966·Journal of Dental Research·R S Lazarus
Sep 25, 1997·Social Science & Medicine·S Folkman
Feb 14, 2004·Nursing Inquiry·Paula SherwoodMary Lovely
Mar 15, 2006·Research in Nursing & Health·Paula R SherwoodSandy Remer
Nov 13, 2007·Neuro-oncology·Jane R SchubartElana Farace
Sep 2, 2008·The Lancet Oncology·Susan CattLesley Fallowfield
Oct 5, 2011·Journal of Neuro-oncology·Claudia Yvonne FinocchiaroAndrea Salmaggi
Nov 1, 2011·Nigerian Journal of Clinical Practice·W C MezueB G Mathew
Feb 7, 2012·Neuro-oncology·Elizabeth FordLesley Fallowfield
Jun 5, 2012·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Wendy SterckxPaul Clement

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Citations

Jan 25, 2018·BMJ Supportive & Palliative Care·Karin PiilMary Jarden
Oct 16, 2019·Journal of Palliative Medicine·Benzi M KlugerChristopher A Jones
Sep 21, 2019·Clinical Journal of Oncology Nursing·Tobi A StuartDaiWai M Olson

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