Creation and pilot test results of the dermatology-specific proxy instrument: the Infants and Toddlers Dermatology Quality of Life

Journal of the European Academy of Dermatology and Venereology : JEADV
P V ChernyshovS E Marron

Abstract

Until now, there was no validated dermatology-specific health-related quality of life (HRQoL) instrument to be used in youngest patients. To create dermatology-specific proxy instrument for HRQoL assessment in children from birth to 4 years. International focus groups, item selection and pilot tests were utilized. In order to avoid the problem of cross-cultural inequivalence, focus group work and pilot tests were planned simultaneously in all national centres of the project. Comprehensibility, clarity, acceptance and internal consistency of new instrument were checked. The title 'Infants and Toddlers Dermatology Quality of Life' was chosen for our new instrument with the proposed acronym 'InToDermQoL'. Focus group work was completed in seven national centres (Croatia, Germany, Greece, Malta, Poland, Romania and Ukraine). A total of 170 families of children with different skin diseases were interviewed, and a pilot version of the instrument was created. Centres from France, Denmark and Spain have joined the project at this stage. Parents of 125 children with skin diseases filled in the pilot versions of the instrument. Good comprehensibility, clarity, acceptance and internal consistency of the InToDermQoL were confirmed. The pil...Continue Reading

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Citations

Nov 14, 2018·Journal of the European Academy of Dermatology and Venereology : JEADV·P V ChernyshovC M Salavastru
Feb 16, 2019·Journal of the European Academy of Dermatology and Venereology : JEADV·P V ChernyshovT V Pochynok
Nov 11, 2019·Journal of the European Academy of Dermatology and Venereology : JEADV·P V ChernyshovS E Marron
Sep 11, 2019·Pediatric Allergy and Immunology : Official Publication of the European Society of Pediatric Allergy and Immunology·Michaela GabesUNKNOWN quality of life working group of the Harmonising Outcome Measures for Eczema (HOME) initiative
May 22, 2021·Journal of Pediatric Health Care : Official Publication of National Association of Pediatric Nurse Associates & Practitioners·Bianca Y KangIsrael D Andrews
Jul 3, 2021·International Journal of Environmental Research and Public Health·Pavel V ChernyshovChristos C Zouboulis
Apr 1, 2019·Dermatology : International Journal for Clinical and Investigative Dermatology·Pavel V Chernyshov

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