Cross-sectional analysis of health-related quality of life in pediatric liver transplant recipients.

The Journal of Pediatrics
Estella M AlonsoStudies of Pediatric Liver Transplantation (SPLIT) Functional Outcomes Group (FOG)

Abstract

To investigate the distribution of health-related quality of life in pediatric liver transplant recipients compared with a normative population. This cross-sectional, multicenter study was conducted at select centers. Patients between 2 and 18 years of age, surviving liver transplantation by at least 12 months, were eligible. Parent/guardian fluency in English or Spanish was required. Children > or =8 years and parents of all children completed the age-appropriate versions of the PedsQL 4.0 (Mapi Research Institute, Lyon, France). Scores were compared with a sample of healthy children (n = 3911) matched by age group, sex, and race/ethnicity and with a sample of pediatric patients with cancer receiving chemotherapy and/or radiation. Participants included 65% (873/1339) of eligible patients. Mean age was 8.17 +/- 4.43 years, and 55% were female. The total and subscale scores of PedsQL 4.0 were lower than in healthy children (P < .001), with effect sizes for self-report ranging from -0.25 for Emotional Functioning to -0.68 for School Functioning. Patients and their parents reported better physical functioning than patients with cancer but similar social and school functioning. Correlations between parent and self-reports were in t...Continue Reading

References

Aug 1, 1966·Psychological Reports·J J Bartko
Mar 11, 1999·Journal of Developmental and Behavioral Pediatrics : JDBP·B D KennardW S Andrews
May 29, 2000·Liver Transplantation : Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society·D E MidgleyE M Alonso
Mar 13, 2001·Liver Transplantation : Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society·V B UnnithanP Painter
Jan 7, 2003·Liver Transplantation : Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society·John C BucuvalasUma Kotagal
Mar 26, 2003·Pediatric Transplantation·Kevin KrullEstella Alonso
Jul 29, 2003·Journal of Pediatric Gastroenterology and Nutrition·E M AlonsoJ Sinacore
Nov 18, 2003·Ambulatory Pediatrics : the Official Journal of the Ambulatory Pediatric Association·James W VarniDouglas Skarr
Jun 5, 2004·Pediatric Transplantation·Conrad R ColeUma Kotagal
Feb 4, 2005·Liver Transplantation : Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society·Rachel TaylorAnil Dhawan
May 10, 2005·Transplantation·Tanja KallerMartin Burdelski
Feb 10, 2006·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·James W VarniMichael Seid
Jan 9, 2008·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Christine A LimbersJames W Varni

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Citations

May 15, 2012·Journal of Clinical Psychology in Medical Settings·Bonney Reed-KnightRonald L Blount
Dec 25, 2010·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·James W VarniUNKNOWN Studies of Pediatric Liver Transplantation Functional Outcomes Group
May 15, 2013·Translational Behavioral Medicine·Daniela P LadnerMichael M Abecassis
Feb 24, 2011·Journal of Pediatric Psychology·Katie A DevineRonald L Blount
Aug 14, 2012·Italian Journal of Pediatrics·Ana Maria CalinescuBarbara E Wildhaber
Feb 20, 2016·Pediatric Transplantation·Catherine PattersonSamantha Stephens
Jun 12, 2013·The Journal of Pediatrics·Shikha S SundaramUNKNOWN Childhood Liver Disease Research and Education Network (ChiLDREN)
Apr 8, 2010·Pediatric Clinics of North America·Samantha J AnthonyVicky Lee Ng
Apr 8, 2010·Pediatric Clinics of North America·Lorraine E Bell, Susan M Sawyer
Dec 17, 2015·Journal of Genetic Counseling·Kimberly SplinterJonathan A Bernstein
Jun 11, 2015·The Journal of Pediatrics·Binita M KamathUNKNOWN Childhood Liver Disease Research Network (ChiLDReN)
Nov 5, 2011·American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons·S KosolaM P Pakarinen
Sep 8, 2010·Liver Transplantation : Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society·Susan M GilmourUNKNOWN SPLIT Research Consortium
Aug 2, 2013·Pediatric Transplantation·Estella M AlonsoUNKNOWN Studies of Pediatric Liver Transplantation (SPLIT) Functional Outcomes Group (FOG)
Jan 5, 2011·Pediatric Transplantation·Christine A LimbersUNKNOWN Studies of Pediatric Liver Transplantation Functional Outcomes Group
May 10, 2012·American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons·S MohammadE M Alonso
Feb 12, 2011·Pediatric Transplantation·Christopher LaRosaKevin E C Meyers
Feb 22, 2012·Liver Transplantation : Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society·Emily M FredericksM James Lopez
Jan 29, 2011·American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons·L G SorensenUNKNOWN Studies of Pediatric Liver Transplantation (SPLIT) and Functional Outcomes Group (FOG)
Sep 16, 2014·Pediatric Transplantation·Emily M FredericksJo Wray
Mar 29, 2014·Liver Transplantation : Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society·Kara M SullivanJohn R Lake
Feb 7, 2016·Liver Transplantation : Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society·Amy G FeldmanEstella M Alonso
Oct 4, 2011·Journal of Hepatology·Patrizia Burra
Dec 24, 2011·The Journal of Pediatrics·Vicky L NgUNKNOWN Studies of Pediatric Liver Transplantation (SPLIT) Research Group
Sep 23, 2014·The Journal of Pediatrics·James W VarniUNKNOWN Pediatric Quality of Life Inventory (PedsQL) Gastrointestinal Symptoms Module Testing Study Consortium
Aug 26, 2014·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·James W VarniJohn F Pohl
Oct 30, 2016·Pediatrics International : Official Journal of the Japan Pediatric Society·Ryota KikuchiKiyoko Kamibeppu
Dec 23, 2016·Liver Transplantation : Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society·Arpita ParmarVicky Lee Ng
Mar 21, 2015·Inflammatory Bowel Diseases·James W VarniUNKNOWN Pediatric Quality of Life Inventory Gastrointestinal Symptoms Module Testing Study Consortium
Feb 23, 2018·Journal of Pediatric Gastroenterology and Nutrition·Isadora de Carvalho TrevizoliElisa de Carvalho
Oct 12, 2013·Liver Transplantation : Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society·Deirdre A Kelly
Apr 27, 2020·Pediatric Transplantation·Aashiv BharijSaeed Mohammad
Sep 11, 2019·Journal of Pediatric Gastroenterology and Nutrition·Daniella OhnemusEstella M Alonso
Apr 10, 2015·Current Opinion in Organ Transplantation·Orna AlpertHsiang Huang

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