Cross sectional survey on the concerns and anxiety of patients waiting for organ transplants

Nephrology
Philip Kam-Tao LiMaggie Miu Man Ng

Abstract

We aimed to gain an understanding of patient concerns while on a transplantation waiting list in areas with long transplant waiting time. The study population comprised patients with organ failure on the transplant waiting list in Hong Kong. They were invited to complete a questionnaire survey. Demographic data and waiting time were collected. Respondents rated their chance of getting transplanted, their subjective concerns and feelings, level of happiness and support received. A total of 442 patients on the waiting list for kidney, liver, lung and heart-lung transplants completed the questionnaire survey. The majority of patients (93.0%) were waiting for kidney transplantation. More than half of the respondents (63.3%) had been waiting for more than 3 years. Patients with longer transplant waiting times had lower self-estimated chance of receiving a transplant (P = 0.004). Self-estimated chance of getting transplanted was positively associated with the happiness score (P < 0.0001). Issues of most concerns to the patients waiting for organ transplants were: inconvenience of therapy (48.2%), disease progression (47.9%), burden to family (59.5%) and financial difficulties (52.3%). More female patients on the waiting list (50.0% v...Continue Reading

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Citations

Jun 23, 2015·Kidney International Supplements·Chi Bon LeungPhilip Kam Tao Li
Jun 1, 2014·Zeitschrift für Psychosomatische Medizin und Psychotherapie·Gundula LudwigWolfgang Söllner
Nov 1, 2015·Transplantation Proceedings·P RamírezP Parrilla
Feb 6, 2017·Seminars in Nephrology·Philip Kam-Tao Li, Vickie Wai-Ki Kwong
Nov 1, 2017·European Journal of Epidemiology·Katy Trébern-LaunayYohann Foucher
Mar 18, 2016·Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates·Noriko NagaoIkuko Miyawaki
Aug 1, 2020·Small·Amin GhavamiNejadAli Khademhosseini
Mar 27, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Anna R GagliardiDonna E Stewart
Aug 31, 2021·Current Opinion in Nephrology and Hypertension·Na TianPhilip Kam-Tao Li

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