Crowdsourcing Diagnosis for Patients With Undiagnosed Illnesses: An Evaluation of CrowdMed

Journal of Medical Internet Research
Ashley N D MeyerHardeep Singh

Abstract

Despite visits to multiple physicians, many patients remain undiagnosed. A new online program, CrowdMed, aims to leverage the "wisdom of the crowd" by giving patients an opportunity to submit their cases and interact with case solvers to obtain diagnostic possibilities. To describe CrowdMed and provide an independent assessment of its impact. Patients submit their cases online to CrowdMed and case solvers sign up to help diagnose patients. Case solvers attempt to solve patients' diagnostic dilemmas and often have an interactive online discussion with patients, including an exchange of additional diagnostic details. At the end, patients receive detailed reports containing diagnostic suggestions to discuss with their physicians and fill out surveys about their outcomes. We independently analyzed data collected from cases between May 2013 and April 2015 to determine patient and case solver characteristics and case outcomes. During the study period, 397 cases were completed. These patients previously visited a median of 5 physicians, incurred a median of US $10,000 in medical expenses, spent a median of 50 hours researching their illnesses online, and had symptoms for a median of 2.6 years. During this period, 357 active case solve...Continue Reading

References

Nov 14, 2006·BMJ : British Medical Journal·Hangwi Tang, Jennifer Hwee Kwoon Ng
Dec 2, 2011·BMJ Quality & Safety·Hardeep SinghKenneth A LaBresh
May 1, 2012·BMJ Quality & Safety·Mark L GraberHardeep Singh
Dec 1, 2012·Journal of Medical Internet Research·Miguel Angel Luengo-OrozJohn Frean
Jan 10, 2013·Health Promotion Practice·Claudia ParvantaHeidi Keller
Jul 12, 2013·Journal of General Internal Medicine·Benjamin L RanardRaina M Merchant
Oct 31, 2014·Journal of Medical Internet Research·Christopher J BradyChirag P Shah
Apr 29, 2015·The American Journal of Medicine·Ashley N D MeyerMark L Graber
Jul 15, 2015·BMJ : British Medical Journal·Hannah L SemigranAteev Mehrotra

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Citations

Apr 2, 2017·Der Internist·T MüllerJ R Schäfer
Apr 9, 2017·Journal of Biomedical Informatics·Anne CocosAaron J Masino
Jul 23, 2018·Diagnosis·Michael L MillensonHardeep Singh
Sep 8, 2018·Health Informatics Journal·Max H SimsMarc W Halterman
Nov 6, 2018·Health Affairs·Robert Berenson, Hardeep Singh
May 17, 2018·Journal of Medical Internet Research·Perrine CréquitPhilippe Ravaud
Sep 30, 2020·Journal of Medical Internet Research·Lara KühnleLorenz Grigull
May 1, 2020·International Journal of Environmental Research and Public Health·Tim Hulsen
May 6, 2020·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Willie H ChangMichael Brudno
May 28, 2019·Journal of Medical Internet Research·Peter WashingtonDennis Paul Wall
Mar 28, 2019·International Journal of Medical Informatics·Caitlin DreisbachSuzanne Bakken
Oct 5, 2021·Zeitschrift für Rheumatologie·J KnitzaJ Leipe

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Software Mentioned

SPSS Statistics
CrowdMed

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