Cultural models of child disability: perspectives of parents in Malaysia

Disability and Rehabilitation
Jennifer MarshallMindy Price

Abstract

Background: This study examined parents' developmental concerns for their children within the context of systems of care in Malaysia. Methods: Focus groups and interviews were conducted in peninsular Malaysia and Borneo. Results: Parents' perceptions of developmental delay stemmed from three sources: the cultural, resource, and the social environments. Conclusion: There is a need to develop a medical support system in Malaysia that considers a life-course perspective, including prenatal care, screening/diagnosis, and services. This system should embrace a family-centered approach to diagnosis, referral, intervention, and support with sensitivity to cultural beliefs, family preferences, and barriers to care. Implications for Rehabilitation Parental perceptions of disability affect the strategies they use to cope. This research found that cultural conceptions of disability, available resources, and social support affect parental perceptions of disability. The resource environment in Malaysia significantly restricts parents' ability to cope with their child's disability. This research recommended that the medical system of Malaysia develops a life-course perspective to disability to provide a range of care for children with disabi...Continue Reading

References

Apr 25, 2003·The Journal of Behavioral Health Services & Research·Regina BussingCynthia Wilson Garvan
Oct 1, 2005·American Journal of Public Health·Jennifer A Pinto-MartinCynthia Landes
Jan 9, 2007·Lancet·Sally Grantham-McGregorUNKNOWN International Child Development Steering Group
Jun 12, 2009·Clinical Child and Family Psychology Review·Patricia M Sullivan
Feb 28, 2013·Biomedical Journal·Nurhayati H MunawerSrijit Das
Mar 1, 2011·Infant Mental Health Journal·Hasnah ToranKaren Lawrence

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