Current Research in Outcome Measures for Pediatric Rheumatic and Autoinflammatory Diseases

Current Rheumatology Reports
Erkan DemirkayaAngelo Ravelli

Abstract

A rational management of children and adolescents with rheumatic and autoinflammatory diseases requires the regular assessment of the level of disease activity and of child health and well-being through the use of well-validated outcome measures. Ideally, such instruments should be simple and feasible and easily applicable in standard clinical practice. In recent years, a number of novel outcome measures have been developed and validated for use in pediatric patients with rheumatic and autoinflammatory illnesses. Furthermore, there has been an increased focus on the appraisal of child and parent perception of the disease impact. The new tools have markedly enlarged the spectrum of disorders and health domains that can be assessed in a standardized way. This progress will help to enhance the reliability of research studies and clinical trials. The aim of the present review is to provide an update of the recent advances in this field of research.

References

Jul 1, 1997·Arthritis and Rheumatism·E H GianniniA Martini
May 1, 1997·Baillière's Clinical Rheumatology·R A LuqmaniP A Bacon
Feb 5, 1998·American Journal of Medical Genetics·E PrasP Langevitz
Nov 11, 1999·Rheumatology·D Isenberg, R Ramsey-Goldman
Nov 16, 2001·Rheumatology·F W MillerUNKNOWN International Myositis Outcome Assessment Collaborative Study Group
Feb 13, 2003·Arthritis and Rheumatism·Rita K BodeLauren M Pachman
Sep 10, 2003·Current Opinion in Rheumatology·Hermine I Brunner, Edward H Giannini
Aug 9, 2005·Seminars in Arthritis and Rheumatism·Adam MorAvi Livneh
Jun 14, 2006·Autoimmunity·Angelo RavelliAlberto Martini
Oct 2, 2007·Arthritis and Rheumatism·L Nandini MoorthyThomas J A Lehman
Dec 5, 2008·Annals of the Rheumatic Diseases·C MukhtyarR A Luqmani
May 1, 2009·Arthritis and Rheumatism·Alessandro ConsolaroUNKNOWN Paediatric Rheumatology International Trials Organisation
Oct 17, 2009·The Journal of Rheumatology·Thaschawee ArkachaisriUNKNOWN Localized Scleroderma Clinical and Ultrasound Study Group
Oct 27, 2009·Best Practice & Research. Clinical Rheumatology·Hermine I Brunner, Angelo Ravelli
Oct 27, 2009·Best Practice & Research. Clinical Rheumatology·Lucy R Wedderburn, Lisa G Rider
May 3, 2011·The Journal of Rheumatology·Roberta Berard, Ronald M Laxer
May 28, 2011·Arthritis Care & Research·Alessandro ConsolaroUNKNOWN Paediatric Rheumatology International Trials Organisation
Dec 23, 2011·Rheumatology·Gokhan KalkanUNKNOWN FMF Arthritis Vasculitis and Orphan Disease Research in Paediatric Rheumatology (FAVOR)
Jan 11, 2012·Arthritis and Rheumatism·Alessandro ConsolaroUNKNOWN Paediatric Rheumatology International Trials Organization
Feb 3, 2012·The Journal of Rheumatology·Giovanni FilocamoAngelo Ravelli
Aug 14, 2012·Arthritis and Rheumatism·Francesco La TorreFrancesco Zulian
Nov 21, 2012·Pediatric Rheumatology Online Journal·Alessandro ConsolaroUNKNOWN Pediatric Rheumatology International Trials Organization (PRINTO)
Dec 22, 2012·Annals of the Rheumatic Diseases·Flora McErlaneUNKNOWN Childhood Arthritis Prospective Study (CAPS)
Sep 13, 2013·Annals of the Rheumatic Diseases·Maryam PiramUNKNOWN EUROFEVER, EUROTRAPS and the Paediatric Rheumatology International Trials Organisation (PRINTO) networks
Dec 19, 2013·Annals of the Rheumatic Diseases·Alessandro ConsolaroUNKNOWN Paediatric Rheumatology International Trials Organization (PRINTO)
Feb 27, 2014·Annals of the Rheumatic Diseases·Seza OzenUNKNOWN FMF Arthritis Vasculitis and Orphan disease Research in pediatric rheumatology (FAVOR) and Turkish FMF study group
Jun 30, 2014·Best Practice & Research. Clinical Rheumatology·Silvia Federici, Marco Gattorno
Jun 30, 2014·Best Practice & Research. Clinical Rheumatology·Nadia J C Luca, Brian M Feldman
Jul 23, 2014·Arthritis Care & Research·Pamela F WeissCarol A Wallace
Apr 3, 2015·Seminars in Immunopathology·Seza Ozen, Ezgi Deniz Batu
Jun 26, 2015·Annals of the Rheumatic Diseases·Nienke M ter HaarJasmin B Kuemmerle-Deschner

❮ Previous
Next ❯

Citations

Apr 1, 2017·Current Opinion in Rheumatology·Zijun WangQianjin Lu
Jul 22, 2019·Rheumatology International·Nuray Aktay AyazHafize Emine Sönmez
Nov 9, 2020·The British Journal of Dermatology·T VazquezV P Werth
Jan 17, 2021·International Journal of Rheumatic Diseases·Hafize Emine SönmezNuray Aktay Ayaz

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Clinical Nurse Specialist CNS
Patricia Vermeersch, Jill Beavers
Annals of the Rheumatic Diseases
P J MeaseWilliam J Taylor
Advances in Experimental Medicine and Biology
Ruth Wittoek, Herman Mielants
Anaesthesia
W R Hain, B A Waldron
© 2022 Meta ULC. All rights reserved