Customization of the TRU-PBMT App (Technology Recordings to better Understand Pediatric Blood and Marrow Transplant)

Journal of Pediatric Nursing
Jacqueline VaughnNirmish Shah

Abstract

Our investigative team is integrating mobile health technologies into pediatric blood and marrow transplant (PBMT) care. We aim to evaluate whether patient-generated health data can be used to monitor health status and enhance symptom management. While there are numerous health-related apps, none address the symptoms or care needs specific to PBMT patients. This article describes development of the Technology Recording to better Understand Pediatric Blood and Marrow Transplant (TRU-PBMT) mobile application. A one-time survey was distributed to PBMT clinicians, caregivers, and outpatients to elicit feedback and suggestions for the app's design. Feedback from clinicians (n = 23), caregivers (n = 5), and PBMT outpatients (n = 4) indicated the app would be acceptable and useable with this group of patients between eight and eighteen years of age. Suggestions from respondents included: making the app language and graphics more child-friendly; adding symptoms such as fatigue, mucositis, bleeding; and a visual stool chart. Patient, caregiver, and clinician feedback was valuable in creation of the TRU-PBMT app. We designed a pediatric friendly, PBMT-symptom-specific app, which we will test in future studies. This app facilitates patien...Continue Reading

Citations

Jan 24, 2020·Nursing Research·Jacqueline VaughnNirmish Shah
Mar 14, 2021·Journal of the American Medical Informatics Association : JAMIA·Jacqueline VaughnNirmish Shah
Feb 25, 2021·ANS. Advances in Nursing Science·Jacqueline VaughnRyan J Shaw

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