Data Access and Usage Practices Across a Cohort of Researchers at a Large Tertiary Pediatric Hospital: Qualitative Survey Study

JMIR Medical Informatics
Hoi Ki Kiki HoElodie Portales-Casamar

Abstract

Health and health-related data collected as part of clinical care is a foundational component of quality improvement and research. While the importance of these data is widely recognized, there are many challenges faced by researchers attempting to use such data. It is crucial to acknowledge and identify barriers to improve data sharing and access practices and ultimately optimize research capacity. To better understand the current state, explore opportunities, and identify barriers, an environmental scan of investigators at BC Children's Hospital Research Institute (BCCHR) was conducted to elucidate current local practices around data access and usage. The Clinical and Community Data, Analytics and Informatics group at BCCHR comprises over 40 investigators with diverse expertise and interest in data who share a common goal of facilitating data collection, usage, and access across the community. Semistructured interviews with 35 of these researchers were conducted, and data were summarized qualitatively. A total impact score, considering both frequency with which a problem occurs and the impact of the problem, was calculated for each item to prioritize and rank barriers. Three main themes for barriers emerged: the lengthy turna...Continue Reading

References

Aug 4, 2010·Philosophical Transactions. Series A, Mathematical, Physical, and Engineering Sciences·Melissa H CraginMichael Witt
Jul 9, 2011·PloS One·Carol TenopirMike Frame
Dec 23, 2011·Environmental Health : a Global Access Science Source·Neil Pearce, Allan H Smith
Jul 25, 2013·Healthcare Informatics Research·Kyoungyoung Jee, Gang-Hoon Kim
Nov 8, 2014·BMC Public Health·Willem G van PanhuisDonald S Burke
Jan 1, 2014·Health Information Science and Systems·Wullianallur Raghupathi, Viju Raghupathi

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Apr 25, 2020·Clinical Diabetes : a Publication of the American Diabetes Association·Guy Todd AlonsoJoyce Lee

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