Dealing with chemotherapy-related symptoms at home: a qualitative study in adult patients with cancer

European Journal of Cancer Care
A CoolbrandtK Milisen

Abstract

Given that chemotherapy treatments are done mostly in an outpatient setting, patients with cancer must deal with treatment-related symptoms mainly at home. Evidence suggests that they often feel left alone or unprepared to do so. This qualitative study explores how patients deal with chemotherapy-related symptoms in their home, which factors and ideas influence their self-management and what role professional caregivers play. One-off, semi-structured interviews were held with 28 adult patients with cancer being treated with chemotherapy. Using a Grounded Theory approach, we cyclically collected and analysed data to come to a thorough understanding of the major conceptual themes and their interconnections. Dealing with chemotherapy-related symptoms involves a process of experiencing and learning how side effects unfold over time and how to deal with them. Patients express very personal symptom experiences and symptom-management styles, which are shaped by personal factors (e.g. coping with cancer and cancer treatment, perceived level of control) and environmental factors (e.g. professionals' attitude, information resources). Improving symptom self-management support requires active exploration of the personal symptom experience ...Continue Reading

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Citations

Oct 12, 2016·Scandinavian Journal of Caring Sciences·Marjan Mardani-Hamooleh, Haydeh Heidari
Dec 19, 2017·Oncology Nursing Forum·Annemarie CoolbrandtKoen Milisen
Jul 13, 2019·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Zhong LiLiang Zhang
Mar 3, 2020·Cancer Medicine·Kari Ala-LeppilampiAaron R Hansen
Aug 25, 2020·Oncology Nursing Forum·Kristine L KwekkeboomKathleen Montgomery
Jan 19, 2021·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Liping LiuChunlan Zhou
Oct 30, 2020·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Bruno MagalhãesCélia Santos
Aug 7, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Saba FarziMehran Sharifi Esfahani

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