'Death is difficult in any language': A qualitative study of palliative care professionals' experiences when providing end-of-life care to patients from culturally and linguistically diverse backgrounds

Palliative Medicine
Anna GreenElizabeth Lobb

Abstract

Ethnic minority patients have unique challenges in accessing health services. These include language difficulties, unfamiliarity with the health system, lower rates of cancer screening and survival, higher rates of reported side effects from cancer treatment and poorer quality of life. Little is known about this patient group when transitioning to palliative care. To elicit the experiences of palliative care health professionals when providing care for patients from culturally and linguistically diverse backgrounds which differ from mainstream Australian language and culture. An emergent qualitative design, informed by theoretical and procedural direction from grounded theory research. Four focus groups held with palliative care staff ( n = 28) in a single specialist palliative care service in Australia. The following themes emerged: (1) determining the rules of engagement around discussion of diagnosis and prognosis, (2) navigating the challenge of language to patient understanding, (3) understanding migration experiences to establish trust, (4) maintaining the balance between patient safety and comfort care, (5) providing a good death experience through accommodation of beliefs, and (6) navigating the important role of family...Continue Reading

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Citations

Oct 5, 2019·The American Journal of Hospice & Palliative Care·Ping Ying ChooAndy Hau Yan Ho
Sep 1, 2020·Journal of Advanced Nursing·Marie ClancyJenny Phillimore
Sep 10, 2020·Journal of General Internal Medicine·Karleen F GiannitrapaniKarl A Lorenz
Feb 12, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Xiaocheng LiuWenjuan Ying
Oct 30, 2020·International Journal of Environmental Research and Public Health·Xanthe de VoogdJeanine L Suurmond
Feb 25, 2021·Global Health Promotion·Bilkis VissandjéeIsabelle Van Pevenage
May 19, 2021·The American Journal of Hospice & Palliative Care·Milagros D SilvaM Carrington Reid
Aug 7, 2021·International Journal of Qualitative Studies on Health and Well-being·Carla ReigadaCarlos Centeno

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