Decision-making about pregnancy for women with cystic fibrosis

British Journal of Health Psychology
Angela M SimcoxSteven P Conway

Abstract

This study aims to generate experiential data about the decision-making process encountered by 12 women with cystic fibrosis (CF) considering pregnancy. This study uses a qualitative grounded theory methodology to analyse the data and develop a conceptual hierarchical model of salient issues. Twelve women completed a semi-structured interview accompanied by quantitative self-report measures of quality of life and psychological well-being, and indicators of health and treatment status were used. Descriptive data demonstrated that the sample did not differ significantly from other published samples. Four core categories emerged: (1) impact of the decision; (2) preparation for making and living with the decision; (3) owning the decision; and (4) personal dilemmas. Each comprised a number of overlapping conceptual and subcategories. Influencing factors included the impact of pregnancy on participants' health, and upon their ability to care for the child, the pregnancy experiences of other women with CF, the moral implications of having a child and the support and beliefs of family members. The findings extend the current knowledge in this area. We recommend development of guidelines for supporting and advising chronically ill young...Continue Reading

References

Sep 1, 1991·American Journal of Medical Genetics·P G FretsM F Niermeijer
Jul 1, 1990·Developmental Medicine and Child Neurology·B A CromerJ Judis
Jan 1, 1990·Social Science & Medicine·K Charmaz
Jun 1, 1983·Acta Psychiatrica Scandinavica·A S Zigmond, R P Snaith
Jul 1, 1995·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·S M SawyerG Bowes
Nov 1, 1994·Journal of Psychosomatic Research·B SjögrenU Hansson
Jul 1, 1994·Psychological Bulletin·D Frisch, R T Clemen
Feb 27, 1993·BMJ : British Medical Journal·S WaltersM E Hodson
Aug 1, 1996·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·J C SurísR W Blum
Jan 1, 1997·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·M ChoquetR Manfredi
Feb 1, 1997·Western Journal of Nursing Research·R L Sowell, T R Misener
Sep 17, 1999·BMJ : British Medical Journal·A M O'ConnorJ Jones
Nov 1, 2001·The Cochrane Database of Systematic Reviews·A M O'ConnorJ Jones
Jun 26, 2002·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Suzanne C Smeltzer
Feb 6, 2003·Child: Care, Health and Development·Suzanne MukherjeeRobert Lewin
Jun 14, 2003·The Cochrane Database of Systematic Reviews·A M O'ConnorJ Jones
Oct 7, 2004·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·P E PfefferM E Hodson
May 3, 2006·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·Edith Y ChengMoria L Aitken

❮ Previous
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Citations

Apr 11, 2015·Disability and Rehabilitation·Gerald UllrichBurkhard Bewig
Feb 1, 2011·Clinics in Chest Medicine·John R McArdle
Jul 5, 2012·Journal of Midwifery & Women's Health·Noleen K McCorryRoy Harper
Dec 23, 2014·The Lancet. Respiratory Medicine·Katherine B Frayman, Susan M Sawyer
Sep 23, 2016·Psychology, Health & Medicine·Hazel BarkerCatherine O'Leary
Dec 22, 2017·Journal of Clinical Nursing·Melanie JessupScott C Bell
May 24, 2019·The Cochrane Database of Systematic Reviews·Helen MaloneImelda Coyne
Aug 18, 2016·Maternal and Child Health Journal·Traci M KazmerskiElizabeth Miller
Dec 22, 2016·Pulmonary Medicine·Sophie L CammidgeChristine Etherington
Dec 1, 2014·Obstetric Medicine·James GeakeScott C Bell
Dec 14, 2018·Sexuality and Disability·Emily NorrisKirsty James
Jan 19, 2010·British Journal of Hospital Medicine·A M SimcoxJ Hewison
May 19, 2019·Contraception·Sarah A TraxlerCourtney A Schreiber
Aug 31, 2021·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·Raksha JainJennifer L Taylor-Cousar

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