Decision-making around gastrostomy tube feeding in children with neurologic impairment: Engaging effectively with families

Paediatrics & Child Health
Sanjay MahantPeter Rosenbaum

Abstract

Children with neurologic impairment may not be able to feed safely or sufficiently by mouth to maintain an adequate nutritional state. Gastrostomy tube (G-tube) feeding is an important, often essential, intervention in such situations. However, many parents and families struggle with the decision to proceed with G-tube feeding. This practice point reviews common reasons for decisional conflict in parents and explores key aspects of life with G-tube feeding. A framework for shared decision-making and the International Classification of Functioning, Disability and Health (ICF) approach are highlighted. Practical recommendations for clinicians on engaging with families for decision-making around this life-changing intervention are provided.

References

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Citations

Jun 17, 2020·Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz·Katharina A SchiergensEsther M Maier
Dec 22, 2020·Nutrition in Clinical Practice : Official Publication of the American Society for Parenteral and Enteral Nutrition·Ruba A AbdelhadiUNKNOWN ASPEN Enteral Nutrition Task Force Pediatric Work Group
Jan 1, 2021·American Journal of Medical Genetics. Part a·Meaghann S WeaverNicole D Birge
Jun 26, 2021·International Journal of Qualitative Studies on Health and Well-being·Ulrika MårtenssonStefan Nilsson
Jun 23, 2021·Journal of Pediatric Gastroenterology and Nutrition·Matjaž HomanJorge Amil-Dias
Aug 8, 2021·Journal of Pain and Symptom Management·Danielle JonasJori F Bogetz
Oct 27, 2021·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Ann DadichChris Elliot

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