Decision-making involvement of individuals with dementia

The Gerontologist
Heather L Menne, Carol J Whitlatch

Abstract

Research underscores how autonomy and decision-making involvement may help to enhance the quality of life of older adults; however, individuals with dementia are often excluded from decision making that is related to their daily functioning. In this study we use a modified version of the Stress Process Model to consider the stress process of individuals with chronic illness, and in particular to explore the predictors of decision-making involvement among individuals with dementia (n = 215). We collected data from individual with dementia (IWD)-family caregiver dyads. Relying primarily on data from the IWD, we used hierarchical multiple regression analysis to determine the predictors of the IWD's decision-making involvement. Results indicate that individuals who report more decision-making involvement are younger, female, have more education, have a nonspousal caregiver, have fewer months since their diagnosis, exhibit fewer problems with activities of daily living and fewer depressive symptoms (based on caregiver report), and place more importance on autonomy/self-identity. In our discussion we examine the importance of autonomy and impairment levels for understanding the decision-making involvement of persons with dementia.

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Citations

Mar 18, 2009·International Psychogeriatrics·Brian DraperTanya Ward
Mar 1, 2012·Aging & Mental Health·A Lynn SnowMelinda A Stanley
Dec 22, 2009·The Gerontologist·Katherine S JudgeCarol J Whitlatch
Aug 18, 2012·The Gerontologist·Allison M ReamyCarol J Whitlatch
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Jun 5, 2013·The British Journal of Psychiatry : the Journal of Mental Science·Daniel StrechMartina Schmidhuber
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Dec 25, 2013·Disability and Rehabilitation. Assistive Technology·Kounosuke TomoriToshio Higashi
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Feb 16, 2008·American Journal of Alzheimer's Disease and Other Dementias·Heather L MenneLynn Friss Feinberg
Apr 6, 2017·The Gerontologist·Lyndsey M MillerKaren S Lyons
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Dec 7, 2018·Aging & Mental Health·Jem BhattGeorgina Charlesworth
Nov 24, 2020·Dementia·Rotem PerachUNKNOWN DETERMIND team

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