Defining the role of the public in Health Technology Assessment (HTA) and HTA-informed decision-making processes.

International Journal of Technology Assessment in Health Care
Jackie StreetDevidas Menon

Abstract

The terminology used to describe community participation in Health Technology Assessment (HTA) is contested and frequently confusing. The terms patients, consumers, public, lay members, customers, users, citizens, and others have been variously used, sometimes interchangeably. Clarity in the use of terms and goals for including the different groups is needed to mitigate existing inconsistencies in the application of patient and public involvement (PPI) across HTA processes around the world. We drew from a range of literature sources in order to conceptualize (i) an operational definition for the "public" and other stakeholders in the context of HTA and (ii) possible goals for their involvement. Draft definitions were tested and refined in an iterative consensus-building process with stakeholders from around the world. The goals, terminology, interests, and roles for PPI in HTA processes were clarified. The research provides rationales for why the role of the public should be distinguished from that of patients, their families, and caregivers. A definition for the public in the context of HTA was developed: A community member who holds the public interest and has no commercial, personal, or professional interest in the HTA proce...Continue Reading

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Citations

Jan 19, 2021·International Journal of Technology Assessment in Health Care·Hossein Haji Ali AfzaliJonathan Karnon
Jan 23, 2021·International Journal of Technology Assessment in Health Care·Sarah BerglasDaryl Bell
Jan 26, 2021·International Journal of Technology Assessment in Health Care·Maria BenkhaltiPierre Dagenais
Mar 23, 2021·International Journal of Technology Assessment in Health Care·Sophie Staniszewska, Sophie Söderholm Werkö
Apr 13, 2021·International Journal of Technology Assessment in Health Care·Sophie Söderholm Werkö, Sophie Staniszewska

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