Defying all odds: coping with the challenges of volunteer caregiving for patients with AIDS in South Africa

Journal of Advanced Nursing
Olagoke Akintola

Abstract

This paper is a report of a study to explore the challenges experienced by volunteer caregivers of people living with HIV/AIDS and the strategies employed in coping with these challenges. Informal caregiving is associated with stresses that often results in poor health outcomes for caregivers. In South Africa, volunteers play a major role in the provision of care for people living with HIV/AIDS and have been shown to experience burdens as a result of caring. However, little is known about stress and coping among volunteer caregivers. An ethnographic study was conducted, using observation and in-depth interviews, to collect data with 20 volunteers and other stakeholders in two semi-rural communities in South Africa over a 19-month period in 2002/2003. 'Defying all odds' emerged as the central theme that encompassed the various ways in which volunteer caregivers dealt with the many practical challenges confronting them. These challenges initially posed a threat to volunteering work but were gradually appraised by volunteers as challenges that could be dealt with using various strategies in order to continue providing care. Eight themes highlighting these challenges and the coping strategies employed by volunteers were identified....Continue Reading

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Citations

May 22, 2013·BMC Public Health·Yueh-Mei GauLee Stewart
Mar 14, 2012·Health Research Policy and Systems·Karen DanielsKarin C Ringsberg
Jan 19, 2016·Journal of Clinical Nursing·Pranee C LundbergPhong Hoang Le
Dec 9, 2015·Journal of Epidemiology and Global Health·Jawad FaresKhalil El Asmar
Aug 30, 2008·Journal of Advanced Nursing·Alison J Tierney
Aug 21, 2012·Journal of Community Psychology·Caroline KuoMarisa Casale
Feb 26, 2013·International Journal of Nursing Practice·Yueh-Mei GauPetra Buettner
May 21, 2013·Journal of Advanced Nursing·Olagoke AkintolaWenche Dageid
Aug 1, 2015·African Journal of AIDS Research : AJAR·Maretha Visser, Princess Mabota
Apr 21, 2016·BMC Health Services Research·Levison Stanely ChiwaulaUNKNOWN PURE Malawi Consortium
Jul 14, 2016·AIDS Care·Lenore MandersonNolwazi Mkhwanazi
Dec 1, 2009·African Journal of AIDS Research : AJAR·John Mazzeo, Loveness Makonese
Nov 25, 2017·SAHARA J : Journal of Social Aspects of HIV/AIDS Research Alliance·Irene HatzipapasEstie Janse van Rensburg
Oct 14, 2021·Health Research Policy and Systems·Christopher J ColvinHenry B Perry

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