Description and initial evaluation of an educational and psychosocial support model for adults with congenitally malformed hearts

Patient Education and Counseling
Helén RönningAnna Strömberg

Abstract

Various programmes for adults with congenitally malformed hearts have been developed, but detailed descriptions of content, rationale and goals are often missing. The aim of this study was to describe and make an initial evaluation of a follow-up model for adults with congenitally malformed hearts, focusing on education and psychosocial support by a multidisciplinary team (EPS). The model is described in steps and evaluated with regards to perceptions of knowledge, anxiety and satisfaction. The EPS model included a policlinic visit to the physician/nurse (medical consultation, computer-based and individual education face-to-face as well as psychosocial support) and a 1-month telephone follow-up. Fifty-five adults (mean age 34, 29 women) with the nine most common forms of congenitally malformed hearts participated in the EPS model as well as the 3-months follow-up. Knowledge about congenital heart malformation had increased in 40% of the participants at the 3-months follow-up. This study describes and evaluates a model that combines a multidisciplinary approach and computer-based education for follow-up of adults with congenitally malformed hearts. The EPS model was found to increase self-estimated knowledge, but further evaluat...Continue Reading

References

Oct 29, 2002·Patient Education and Counseling·Julie BarlowJenny Hainsworth
Dec 4, 2003·Medical Education·Paul Bradley, Keith Postlethwaite
Jan 16, 2004·Journal of Clinical Nursing·Debbie KralikNatalie Howard
Feb 28, 2006·Academic Medicine : Journal of the Association of American Medical Colleges·Tiffany Grunwald, Charisse Corsbie-Massay
Nov 7, 2006·Patient Education and Counseling·Eva Beranova, Catherine Sykes
Dec 20, 2007·The Journal of Cardiovascular Nursing·Selina Kikkenborg Berg, Pernille Grarup Hertz
Jul 19, 2008·Cardiology in the Young·Helén RönningAnna Strömberg

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Citations

Oct 19, 2016·Journal of Advanced Nursing·Susanne M van HooftHennie R Boeije
Feb 20, 2013·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Eva GoossensPhilip Moons
Oct 29, 2013·The Cochrane Database of Systematic Reviews·Deirdre A LaneGregory Y H Lip

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