Determining research priorities for young people with haematological cancer: a value-weighting approach

European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)
Tara Clinton-McHargAnna Williamson

Abstract

Haematological malignancies account for a third of all cancers affecting adolescents and young adults (AYAs). Funding agencies are regularly faced with the dilemma of how to deploy resources in order to provide the greatest possible benefit to this patient group. This study used a value-weighting approach to quantify the stakeholders' perceptions about how resources should be allocated to best improve outcomes for AYA patients and their families. One hundred and fifty seven participants (112 health care providers, researchers and other professionals and 45 patients and carers) were invited to complete a web-based value-weighting questionnaire and indicate how they would allocate 100 units of funding among various research approaches, areas and populations. Eighty participants (51%) completed the questionnaire. Strategic research was allocated a significantly higher proportion of funding than investigator-driven research. For research areas, clinical medicine and psychosocial research were allocated the highest proportion of funding. Within research populations, AYAs who were newly diagnosed, relapsed or finished treatment were allocated the largest proportion of funds. Psychosocial research which focussed on identifying risk an...Continue Reading

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Citations

Feb 4, 2014·Journal of Pediatric Nursing·Maria BrennerDeirdre Kelleher
Feb 17, 2015·European Journal of Cancer Care·S Medlow, P Patterson
Jan 25, 2019·European Journal of Cancer Care·Anne-Floor M SchölvinckJacqueline E W Broerse
Nov 1, 2018·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Kathrine Hoffmann PiiMary Jarden
Oct 4, 2018·Archives of Disease in Childhood·Pamela Lopez-VargasUNKNOWN Kaleidoscope Project workshop investigators
Jun 11, 2016·Research Involvement and Engagement·Suzanne ParsonsUNKNOWN Barbara Ansell National Network for Adolescent Rheumatology (BANNAR)
Jul 5, 2017·Pediatric Rheumatology Online Journal·Suzanne ParsonsUNKNOWN Barbara Ansell National Network for Adolescent Rheumatology

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