Developing and evaluating guidelines for patient and public involvement (PPI) in research

International Journal of Health Care Quality Assurance
Katherine PollardCathy Rice

Abstract

A growing literature reports the benefits and challenges of patient and public involvement (PPI) in research; nevertheless, understanding PPI in research design remains under-developed. The purpose of this paper is to report learning experiences from involving service users as research partners in two projects that developed and evaluated guidelines for good practice in this regard. The main objective was to evaluate these guidelines. PPI research guidelines were developed through five workshops involving service users/patients, carers, health and social care professionals/managers and academics. Using a participatory qualitative approach, these guidelines were evaluated through mapping them against the two service user research partners' experience within another project. The guidelines were found to be fit for purpose, as they allowed problems to be easily identified and reassurance that required standards were being met. Both academic and service user research partners learned and gained relevant skills. Two service user research partners also found their daily living skills unexpectedly enhanced by project participation. The PPI guidelines, the authors developed were produced by consensus involving several stakeholders. Ser...Continue Reading

References

Feb 26, 1999·BMJ : British Medical Journal·P G ShekelleJ Grimshaw
Jun 29, 2002·Health Policy·Jonathan BooteCindy Cooper
Aug 21, 2009·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Christopher McKevittCharles Wolfe
May 6, 2010·Journal of Mental Health·Emma HardingCatherine Johnson Pettinari
Sep 24, 2010·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Christabel OwensPeter Aitken
Jul 20, 2012·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Jo BrettRashida Suleman
Aug 2, 2012·Psychological Medicine·K StaleyG Szmukler
Jun 5, 2013·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Nathan D ShippeeM Hassan Murad

❮ Previous
Next ❯

Citations

Feb 9, 2018·Health Research Policy and Systems·Elizabeth ManafoVirginia Vandall-Walker
Jun 16, 2017·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Anna KearneyKerry Woolfall
Jun 26, 2018·Journal of Evidence-based Medicine·Astrid Austvoll-Dahlgren, Marit Johansen
Apr 20, 2019·Archives of Disease in Childhood·Jenny PrestonBob Phillips
Aug 20, 2015·Research Involvement and Engagement·Andy GibsonNicky Britten
Apr 24, 2019·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Trisha GreenhalghAlan Chant

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Health & Social Care in the Community
Fiona RossEileen Clark
Journal of Psychiatric and Mental Health Nursing
M Took
Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
David H EvansPat Turton
The British Journal of Psychiatry : the Journal of Mental Science
Premila Trivedi, Til Wykes
© 2021 Meta ULC. All rights reserved