Developing instruments to measure the quality of decisions: early results for a set of symptom-driven decisions

Patient Education and Counseling
Karen R SepuchaAlbert G Mulley

Abstract

To identify a set of critical facts and key goals and concerns for five common medical conditions, benign prostate disease, hip and knee osteoarthritis, herniated disc and spinal stenosis and examine the validity of the method for identifying these items. Investigators identified facts and goals through literature reviews and qualitative work with patients and providers. A cross-sectional survey of patients and providers was conducted to examine the accuracy, importance and completeness of the identified items. 42 facts (6-16 per condition) and 31 goals and concerns (4-13 per condition) were identified. 182 responses were obtained from patients (76.5% response rate) and 113 responses from providers (78% response rate). Overall, the facts were accurate, important and complete across all conditions. For one condition (hip osteoarthritis), the goals did not meet the criteria for completeness. There was more disagreement between patients and providers around the ranking of goals than of facts. Overall, respondents found the identified facts and goals accurate, important and complete. Significant differences between patients' and providers' rankings highlight the importance of including both perspectives. Instruments to measure whet...Continue Reading

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Citations

May 27, 2011·Academic Medicine : Journal of the Association of American Medical Colleges·Harold C Sox
Jul 7, 2011·BMC Musculoskeletal Disorders·Karen R SepuchaCarrie A Levin
Jun 12, 2012·BMC Medical Informatics and Decision Making·Suzanne K LinderRobert J Volk
Jan 1, 2013·BMC Medical Informatics and Decision Making·Karen R SepuchaRichard Thomson
Jan 1, 2013·BMC Medical Informatics and Decision Making·Purva AbhyankarPeep Stalmeier
Aug 22, 2014·BMC Medical Informatics and Decision Making·Clara N LeeKaren R Sepucha
Dec 18, 2013·Journal of Health Services Research & Policy·Mette KaltoftJack Dowie
Jul 31, 2013·Journal of the American College of Surgeons·Karen SepuchaJeffrey N Katz
Jun 18, 2011·Annals of Neurology·Robert G Holloway, Steven P Ringel
Jun 17, 2010·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Clara N LeeKaren R Sepucha
Oct 7, 2011·Pacing and Clinical Electrophysiology : PACE·Dan D MatlockJean S Kutner
Apr 9, 2011·Obesity·David E ArterburnWilliam G Weppner
Sep 17, 2015·BMC Health Services Research·Mathilde BerghoutJane M Cramm
Jul 30, 2015·Musculoskeletal Care·Kelli D AllenJohn W Williams
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Aug 9, 2012·Patient Education and Counseling·Sian K SmithKirsten J McCaffery
May 18, 2012·Journal of the American College of Cardiology·Mary Norine WalshUNKNOWN American College of Cardiology Foundation
Aug 12, 2016·Preventive Medicine Reports·Lisa M LowensteinRobert J Volk
Aug 28, 2016·Pacing and Clinical Electrophysiology : PACE·Ariel R GreenDaniel D Matlock
Dec 15, 2016·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Ashley J HoustenRobert J Volk
Jun 27, 2013·Journal of Primary Care & Community Health·Alison R LandreyTom Denberg
Oct 31, 2017·Coronary Artery Disease·Liis HinsbergJason H Wasfy
Mar 27, 2018·Psycho-oncology·Ashley J HoustenDiana S Hoover
Jul 9, 2011·The American Journal of Hospice & Palliative Care·Jennifer KryworuchkoIan D Graham
May 5, 2010·Health Affairs·Christine Bechtel, Debra L Ness
Apr 8, 2011·Health Affairs·Floyd J FowlerKaren R Sepucha
Mar 4, 2014·JBJS Reviews·James SloverColin Nelson
Jul 17, 2019·Journal of Ovarian Research·Anette Stolberg KargoKarina Dahl Steffensen
Feb 9, 2021·Pacing and Clinical Electrophysiology : PACE·Christopher E KnoepkeDaniel D Matlock
Aug 28, 2021·BMC Medical Informatics and Decision Making·Suzanne BrodneyKaren Sepucha
Oct 8, 2021·Primary Health Care Research & Development·Joseph N A AkanuweAloysius Niroshan Siriwardena
Sep 17, 2021·Pacing and Clinical Electrophysiology : PACE·Bryan C WallaceDaniel D Matlock

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