Development and evaluation of a survey to assess survivor knowledge change after survivorship care plans: WiSDOM-B (Wisconsin Survey of cancer DiagnOsis and Management in Breast cancer)

Journal of Cancer Education : the Official Journal of the American Association for Cancer Education
Gabrielle B RocqueAmye J Tevaarwerk

Abstract

The oncology community has increased efforts to inform survivors about long-term risks and planned follow-up after cancer treatment. Survivorship care plans (SCPs) have been recommended since 2005, yet the benefits of implementation are only now being emphasized. SCPs are hypothesized to enhance patient knowledge. The Wisconsin Survey of Diagnosis and Management in Breast Cancer (WiSDOM-B) was developed to measure changes in breast cancer survivor knowledge pre- and postdelivery of an SCP. The WiSDOM-B was developed with input from oncologists (medical, radiation, and surgical), patient advocates, cancer survivors, and survey design experts. Initially, nine patients evaluated survey content, and modifications were made to enhance clarity. Subsequently, 38 patients were enrolled in a randomized pilot trial assessing SCP impact on knowledge of diagnosis, treatment, late effects, and follow-up (WiSDOM-B) and satisfaction with knowledge (existing survey). The WiSDOM-B was developed using feedback from multiple stakeholders. Baseline knowledge was poor and remained stable in the control arm. There was a suggestion of increased survivor knowledge following receipt of SCPs in the intervention arm (68.4 vs. 74.4%). Change was not stati...Continue Reading

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Citations

Sep 22, 2018·Clinical Journal of Oncology Nursing·Callie M BerkowitzBridget F Koontz
Jan 16, 2019·Journal of Cancer Survivorship : Research and Practice·Katherine R SterbaTerry A Day
Oct 28, 2019·The Oncologist·Rebecca E HillRebecca Mercieca-Bebber
Feb 25, 2020·PloS One·Hillary Klonoff-Cohen, Mounika Polavarapu
Jul 22, 2016·Cancer Nursing·Kathleen J JohnsonRachel Lerner
Jan 6, 2019·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Alexandra HuaAmye J Tevaarwerk
Feb 12, 2020·The Oncologist·Rebecca E HillRebecca Mercieca-Bebber
Jun 20, 2021·Breast Cancer : the Journal of the Japanese Breast Cancer Society·Abhishek JoshiSabe Sabesan

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