Development and evaluation of an interactive CD-ROM for children with leukemia and their families

Patient Education and Counseling
Mary Alice DragoneSharmila A Kamani

Abstract

To meet the need for an interactive software product to educate children with leukemia, ages 4-11 years, and their families about the disease and its treatment, we developed and evaluated an interactive, comprehensive, multimedia CD-ROM product, Kidz with Leukemia: A Space Adventure. The prototype was tested using a randomized controlled experimental design. Children with leukemia and their parents were randomized to receive either the newly developed CD-ROM or the book You and Leukemia by Lynn Baker. Health care providers (HCPs) and other content/technical experts evaluated only the CD-ROM. Data were collected on children's health locus of control, their understanding of leukemia, and the satisfaction of participants with their assigned intervention. Children in the CD-ROM group, compared with those in the book group, showed increased feelings of control over their health. Although there was a high level of satisfaction with the CD-ROM among all users, younger children and their parents were most satisfied. In conclusion, the CD-ROM, Kidz with Leukemia: A Space Adventure, was found to be a useful, engaging, and empowering tool for children with leukemia and can serve as a model for developing future health-related educational ...Continue Reading

References

Jan 1, 1978·Health Education Monographs·G S Parcel, M P Meyer
Jul 1, 1992·American Journal of Diseases of Children·D Paperny
Jan 1, 1990·Medical Care·P J Bush, R J Iannotti
Apr 1, 1989·The Journal of School Health·R W O'BrienG S Parcel
Oct 1, 1988·The American Journal of Orthopsychiatry·Gregory K FritzMichael Amylon
Sep 1, 1983·American Journal of Diseases of Children·E C Perrin, J M Perrin
Feb 1, 1982·The American Journal of Psychiatry·L A SlavinD J Foster
Mar 1, 1982·The American Journal of Psychiatry·B Pfefferbaum, P M Levenson
Jan 1, 1982·Health Education Quarterly·P J Bush, F R Davidson
Dec 1, 1980·Pediatrics·R Bibace, M E Walsh
Jun 20, 1998·British Journal of Urology·J H EvansS A Redsell
Jul 3, 2007·Molecular Nutrition & Food Research·Retha R NewboldWendy N Jefferson

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Citations

Aug 4, 2004·Patient Education and Counseling·Arjen P StoopMarc Berg
May 7, 2010·Journal of Pediatric Psychology·Emma MeylerFin Breatnach
Dec 14, 2006·Journal of Pediatric Hematology/oncology·Michelle T PritchardJohn A Duley
Nov 15, 2011·Computers, Informatics, Nursing : CIN·Wen-Wen Li, Cerena Leung
Apr 28, 2004·Journal of Medical Internet Research·Michael A Diefenbach, Brian P Butz
Dec 25, 2015·Pediatric Blood & Cancer·Amanda L Thompson, Tammi K Young-Saleme
Aug 5, 2008·Patient Education and Counseling·A Mank, S Molenaar
Aug 21, 2007·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·Ivan L BealeSteve W Cole
Jun 10, 2010·Pediatric Blood & Cancer·Judith K JonesAziza T Shad
May 25, 2013·Rehabilitation Nursing : the Official Journal of the Association of Rehabilitation Nurses·Jeungok Choi
Aug 20, 2015·Games for Health Journal·Meveshni GovenderCarol S Bruggers
Oct 22, 2003·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Lalita K Suzuki, Pamela M Kato
Aug 12, 2006·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Pamela M Kato, Ivan L Beale
Feb 16, 2013·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Veronica LambertMary McCarron
Sep 6, 2011·Journal of Health Psychology·Tamara L DunnAnne B Chang
Nov 30, 2016·The Cochrane Database of Systematic Reviews·Imelda CoyneGreg Sheaf
Oct 20, 2005·The Cochrane Database of Systematic Reviews·E MurrayI Nazareth
Dec 25, 2007·Annual Review of Psychology·Sally E ShaywitzBennett A Shaywitz
Oct 10, 2008·The Cochrane Database of Systematic Reviews·Rita RanmalJ Tim Scott
Mar 3, 2020·Frontiers in Psychology·Alicia Carrion-PlazaInmaculada Montoya-Castilla
Apr 1, 2021·Journal of Genetic Counseling·Georgina M SchlubSian Greening

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