Development and validation of the Lymphedema Symptom and Intensity Survey-Arm

Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer
Sheila H Ridner, Mary S Dietrich

Abstract

The purpose of this instrument development project was to create a self-report tool to evaluate arm lymphedema and associated symptoms in breast cancer survivors. The Lymphedema Symptom Intensity and Distress Survey-Arm (LSIDS-A) was developed and tested in three phases: phase 1-literature review and expert panel; phase 2-preliminary validation; and phase 3-final validation. Phase 1: The most common symptoms experienced by breast cancer survivors with lymphedema were identified. A 52-item scale was developed. Phase 2: 128 community-dwelling breast cancer survivors (64 with lymphedema, 64 without lymphedema) completed the LSIDS-A. Feedback from the participants was that the format was "clear" and "made sense"; therefore, the response structure was left intact. Sixteen items were deleted leaving a 36-item revised instrument. Phase 3: Subsequent testing in a total sample of 236 breast cancer survivors with lymphedema was undertaken. The Cronbach's alpha reliability values for the overall intensity and distress scores were 0.93 and 0.94, respectively. The Kuder-Richardson values ranged from 0.66 to 0.92. Divergent validity evaluated against Marlowe-Crowne Social Desirebility Scale overall was acceptable (intensity, r s = 0.08; dist...Continue Reading

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Citations

Feb 14, 2018·Lymphatic Research and Biology·Anouk J M CornelissenShan Shan Qiu
Oct 6, 2018·Cancer Investigation·Robyn SierlaSharon Kilbreath
Oct 26, 2018·Lymphatic Research and Biology·Sheila H RidnerMary S Dietrich
Nov 7, 2018·Journal of Advanced Nursing·John R Blakeman
Aug 6, 2019·Lymphatic Research and Biology·Jennifer K DoersamSheila H Ridner
Jun 3, 2020·Cancer Medicine·Sheila H RidnerMary S Dietrich
Aug 19, 2020·Lymphatic Research and Biology·Robyn SierlaSharon L Kilbreath
Sep 29, 2020·Lymphatic Research and Biology·Robyn SierlaSharon L Kilbreath
Jun 4, 2020·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Sheila H RidnerBarbara Murphy
Mar 30, 2019·Nature Reviews. Disease Primers·Stanley G RocksonAnna Towers
Jul 3, 2020·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Louise KoelmeyerDeonni Stolldorf
Aug 20, 2020·Breast Cancer Research and Treatment·S L KilbreathD Black
Jun 30, 2018·Rehabilitation Nursing : the Official Journal of the Association of Rehabilitation Nurses·Nancy A Hutchison
Oct 3, 2020·Breast Cancer Research and Treatment·Louise A KoelmeyerCatherine M Dean
Nov 13, 2020·Lymphatic Research and Biology·Sheila H RidnerMary S Dietrich
Nov 30, 2020·Annals of Surgical Oncology·Louise Marie BeelenDalibor Vasilic
Mar 28, 2021·Clinical Breast Cancer·Maureen P McEvoySheldon Feldman
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