Development of a new seizure severity questionnaire: initial reliability and validity testing

Epilepsy Research
Joyce A CramerAnn Jacoby

Abstract

This report describes the initial steps for development of a new scale to assess seizure severity as a treatment response. Standard methodology was used to develop the test instrument. Item generation was performed by selecting items from other questionnaires, and asking patients and epileptologists about seizure components. Face and content validity were assessed in a pilot study with patients and observers. The questionnaire was formatted as a structured interview for a reliability study. Construct validity was assessed with three existing questionnaires. Inter-rater reliability and test-retest reliability were performed as two independent ratings on one day, and one re-interview. Based on item generation and pilot testing (33 patients, 28 observers), the Seizure Severity Questionnaire (SSQ) was organized into warning, activity-movement, and recovery (cognitive, emotional, and physical aspects) stages of seizures. Questions reviewed duration, severity, bothersomeness and overall ratings, and the most bothersome aspect of seizures. The mean SSQ Summary Score was 5.78+/-3.24, inter-rater reliability was 0.76 (N=91), and test-retest reliability was 0.74 (N=63). Construct validity showed statistically significant correlations wit...Continue Reading

References

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Citations

Oct 7, 2003·Epilepsy & Behavior : E&B·Joyce A CramerUNKNOWN Epilepsy Impact Project Group
May 18, 2004·Epilepsy & Behavior : E&B·Joyce A CramerUNKNOWN Epilepsy Impact Project Group
Sep 12, 2003·Seizure : the Journal of the British Epilepsy Association·Rajiv Mohanraj, Martin J Brodie
Jun 6, 2009·Epilepsia·Janelle L WagnerBraxton B Wannamaker
Jun 14, 2014·Epilepsy & Behavior : E&B·Alan B EttingerTim Bancroft
Sep 22, 2010·Epilepsy & Behavior : E&B·Jerónimo SanchoMaría Pérez
Aug 10, 2010·Epilepsy & Behavior : E&B·Dieter Schmidt, Soheyl Noachtar
Sep 29, 2009·Epilepsy & Behavior : E&B·Gigi SmithAnbesaw W Selassie
Nov 18, 2015·Epilepsy & Behavior : E&B·Joyce A CramerFrancisco Rocha
Dec 15, 2015·Neuromodulation : Journal of the International Neuromodulation Society·Robert S FisherBita Najimipour
Nov 11, 2015·Seizure : the Journal of the British Epilepsy Association·Paul BoonRyan M McGuire
Sep 24, 2004·Epilepsy & Behavior : E&B·Joyce A CramerRobert P Kustra
Nov 26, 2003·Epilepsia·Joyce A CramerUNKNOWN Epilepsy Impact Project Group
Mar 2, 2016·Epilepsy & Behavior : E&B·Joyce A Cramer
Apr 19, 2016·Epilepsy & Behavior : E&B·Allison L Clarke, Christine Critchley
Nov 28, 2013·Epilepsy & Behavior : E&B·Simon BorghsJoyce Cramer
Jul 28, 2004·Seizure : the Journal of the British Epilepsy Association·Lena K A RätyBodil M Wilde Larsson
Oct 22, 2013·Epilepsy & Behavior : E&B·Joyce A CramerSimon Borghs
Dec 17, 2014·Epilepsy & Behavior : E&B·Joseph I Sirven
Dec 3, 2014·Epilepsy & Behavior : E&B·Robert S FisherJoyce A Cramer
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Dec 14, 2016·Cephalalgia : an International Journal of Headache·Michele RomoliPaola Sarchielli
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May 12, 2020·Psychological Medicine·Laura H GoldsteinUNKNOWN CODES Study Group
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Nov 29, 2020·Seizure : the Journal of the British Epilepsy Association·Christopher Olusanjo AkosileEmeka Okeke

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