Development of a quality of life instrument for pediatric gastroesophageal reflux disease: qualitative interviews

Journal of Pediatric Gastroenterology and Nutrition
S P AciernoAdam B Goldin

Abstract

Antireflux procedures (ARP) are commonly performed in children and there is no disease-specific quality of life (QOL) instrument for gastroesophageal reflux (GERD) in children. The aim of this study was to identify the relevant domains for developing such an instrument. These domains will be validated in a future study. Parents of 19 patients (age 2 months-18 years) clinically diagnosed with GERD were recruited to complete semistructured interviews. Seven patients with adequate verbal skills were also interviewed. Patients were treated medically (13 patients) or with an ARP (6 patients). The interviews were analyzed using grounded theory. GERD affects QOL through the following domains: symptom severity, feeding quality, sleep quality, hygiene, growth and development, social quality, self-image, coping skills, family QOL, health care usage, and impact of ARP. A greater-than-expected effect on parental QOL and remarkable use of accommodation were identified. A pediatric GERD-specific instrument cannot rely on QOL perception alone, but must address broadly the impact of the disease and the effect of coping skills on the child and his or her family in their activities of daily living and interaction with society. We have identified...Continue Reading

References

Feb 1, 1992·Journal of Pediatric Surgery·D A MartinezD A Caniano
Dec 1, 1980·American Journal of Surgery·J A CarsonE I Smith
Mar 13, 1998·Journal of Oral and Maxillofacial Surgery : Official Journal of the American Association of Oral and Maxillofacial Surgeons·N E WeaverK E Glover
Nov 20, 2002·Journal of the American College of Surgeons·David R FlumCarlos A Pellegrini
Oct 1, 2003·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·S Lawoko, J J F Soares
Mar 26, 2005·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Stephen P McKennaDaniel van Assche
Jul 27, 2005·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Shin YamazakiShunichi Fukuhara
Aug 10, 2005·The American Journal of Gastroenterology·Diego M DiazBenjamin D Gold
Sep 24, 2005·Archives of Disease in Childhood·E Hassall
Dec 6, 2005·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·D M MeadsK Kahler
Dec 8, 2005·Surgical Endoscopy·B DallemagneC Jehaes
Jan 24, 2006·Clinical Pediatrics·Sanjay ChawlaDeepak Kamat
May 25, 2006·Acta Paediatrica·Stephen A SandsFelicia B Axelrod
Jun 27, 2006·International Journal of Pediatric Otorhinolaryngology·Alberto Díez-MontielIñaki Rabanal
Jun 28, 2006·The Journal of Asthma : Official Journal of the Association for the Care of Asthma·J E CloughertyJ D Spengler
Jul 5, 2006·Journal of Pediatric Psychology·Susan J BerrinHenry G Chambers
Apr 9, 2009·The American Journal of Gastroenterology·Philip M ShermanYvan Vandenplas

❮ Previous
Next ❯

Citations

Sep 6, 2011·Journal of Psychopharmacology·Annemarie HeberleinThomas Hillemacher
Apr 6, 2011·Journal of Pediatric Gastroenterology and Nutrition·Leah KleinmanOmar Dabbous
May 28, 2019·Journal of Pediatric Gastroenterology and Nutrition·Morten KvelloKristin Bjørnland
Nov 26, 2014·Advances in Neonatal Care : Official Journal of the National Association of Neonatal Nurses·Tammy SherrowKaren Lasby

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

© 2021 Meta ULC. All rights reserved