Abstract
The aims of this study were to develop an instrument to measure parents' responses and perceptions related to the onset of either seizures or asthma in a child (aged 4-14) and to assess the initial reliability and validity of the instrument. The 35-item scale developed comprised five subscales: Child Support, Family Life/Leisure, Condition Management, Child Autonomy, and Child Discipline. Subjects were parents of 224 children with new-onset seizures and 104 parents of children with new-onset asthma. Internal consistency reliabilities were stronger for Child Support, Family Life/Leisure, and Condition Management than for Child Autonomy and Child Discipline for both samples. Test-retest reliability ranged from good to fair for both samples. The associations between parent positive mood and all of the subscales for both samples in the predicted directions provided key empirical support for validity. The scale has potential for use in research and in the clinical setting. In addition, the scale has potential to be used with other conditions.
References
Mar 1, 1991·Developmental Medicine and Child Neurology·P Hoare, S Kerley
Jun 1, 1970·The British Journal of Social and Clinical Psychology·L Lockyer, M Rutter
Oct 1, 1994·Child Development·R C Pianta, D J Lothman
Jul 15, 1998·Seizure : the Journal of the British Epilepsy Association·S Carlton-FordN Sanchez
Aug 5, 1998·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·J AustinD Rose
Nov 27, 1999·Journal of Child Psychology and Psychiatry, and Allied Disciplines·M HodesR Schwartz
Jan 3, 2001·Pediatrics·J K AustinW T Ambrosius
Jul 17, 2004·Epilepsy & Behavior : E&B·Joan K AustinSusan M Perkins
Sep 8, 2004·Epilepsy & Behavior : E&B·Joan K AustinSusan M Perkins
May 24, 2005·Epilepsy & Behavior : E&B·Roos RodenburgAlbert P Aldenkamp
Jul 6, 2005·Epilepsy & Behavior : E&B·Lynn ChapieskiAnn Alexander
Aug 2, 2005·Journal of Pediatric Psychology·Roos RodenburgMaja Deković
Jul 5, 2006·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Janice M BuelowJoan K Austin
Jun 15, 2007·Epilepsia·Joan K Austin, Rochelle Caplan
Citations
Oct 20, 2009·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Cheryl P ShoreCynthia S Johnson
Apr 16, 2015·Epilepsy & Behavior : E&B·Joan K Austin
Oct 5, 2010·Epilepsy & Behavior : E&B·David W DunnJ K Austin
May 19, 2010·Epilepsy & Behavior : E&B·Gabriel M RonenUNKNOWN North American Pediatric Epilepsy QOL Research Group
Dec 24, 2015·Epilepsia·Avani C ModiJoseph R Rausch
Apr 24, 2010·Epilepsia·Joan K AustinDavid W Dunn
Aug 25, 2015·Epilepsy & Behavior : E&B·S O'TooleJ K Austin
Jul 6, 2011·Epilepsy & Behavior : E&B·J K AustinD W Dunn
Jul 19, 2016·Patient Education and Counseling·Ailbhe BensonJoan K Austin
Sep 25, 2012·Journal of Child Neurology·Nancy A McNamaraRenée A Shellhaas
Jan 13, 2018·Epilepsia·Gigi SmithJanelle L Wagner
Aug 27, 2019·Journal of Health Psychology·Stephanie O'TooleVeronica Lambert
Nov 24, 2021·Journal for Specialists in Pediatric Nursing : JSPN·Marissa N BaudinoJohn M Chaney