Developmental trajectories of social participation in individuals with cerebral palsy: a multicentre longitudinal study

Developmental Medicine and Child Neurology
Siok Swan TanPERRIN+ Study Group

Abstract

This study aimed to determine the developmental trajectories of social participation, by level of gross motor function and intellectual disability, in a Dutch population of individuals with cerebral palsy (CP) aged 1 to 24 years. As part of the Pediatric Rehabilitation Research in the Netherlands (PERRIN+), 424 individuals with CP (261 males, 163 females; mean age [SD] 9y 6mo [6y 2mo]; Gross Motor Function Classification [GMFCS] levels I-V [50% level I]; 87% with spastic CP; 26% with intellectual disability) were longitudinally followed for up to 4 years between 2002 and 2007. Social participation was assessed with the Vineland Adaptive Behavior Scales survey. Effects of age, GMFCS level and intellectual disability were analysed using multilevel modelling. The developmental trajectories for individuals in GMFCS levels I to IV did not significantly differ from each other. For individuals without intellectual disability, the degree of social participation increased with age and stabilized at about 18 years. These individuals reached social participation levels similar to typically developing individuals. The trajectories were significantly less favourable for individuals in GMFCS level V and individuals with intellectual disabili...Continue Reading

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Citations

Jun 15, 2014·Archives of Physical Medicine and Rehabilitation·Siok Swan TanUNKNOWN PERRIN+ study group
Mar 18, 2017·Developmental Medicine and Child Neurology·Joyce L BennerMarij E Roebroeck
Sep 6, 2018·Occupational Therapy in Health Care·Malek AminiMarzieh Pashmdarfard
Aug 21, 2020·BMC Pediatrics·Paula S C ChagasUNKNOWN on Behalf of PartiCipa Brazil Research Group
Oct 14, 2014·Frontiers in Neurology·Mijna Hadders-Algra
Nov 9, 2018·Annals of Rehabilitation Medicine·Seong Woo KimJiyong Kim
Sep 7, 2018·Developmental Medicine and Child Neurology·Marloes van GorpUNKNOWN Perrin-Decade study group
Sep 22, 2019·Developmental Medicine and Child Neurology·Siok Swan TanUNKNOWN Perrin-Decade study group
Jul 18, 2019·Annals of Rehabilitation Medicine·You Gyoung YiMoon Suk Bang
Mar 31, 2016·Developmental Medicine and Child Neurology·Tjitske Hielkema, Mijna Hadders-Algra
Jan 7, 2021·Child Psychiatry and Human Development·Lana E De ClercqSarah S W De Pauw
Feb 27, 2021·Developmental Medicine and Child Neurology·Suzie NotenUNKNOWN ICF Core Set for Adults with Cerebral Palsy Study Group
Jul 31, 2019·International Journal of Developmental Disabilities·Priscila Bianchi LopesThelma Simões Matsukura

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