Difference between patients' and clinicians' perception of pouch dysfunction and its impact on quality of life following restorative proctocolectomy

Colorectal Disease : the Official Journal of the Association of Coloproctology of Great Britain and Ireland
S BrandsborgS Laurberg

Abstract

The Pouch Dysfunction Score (PDS) is a five-item instrument that evaluates bowel function and quality of life following restorative proctocolectomy for ulcerative colitis. The PDS includes items that have a significantly negative impact on quality of life from the patient's point of view. The study aimed to establish how pouch dysfunction is perceived by clinicians in relation to patients experience. Fifty-eight leading clinicians in the field of inflammatory bowel disease were invited to complete two PDS-based exercises. In part 1, they received a list of the 12 bowel symptoms from which the PDS had been developed and were asked to identify and rank (in order of severity) the five they thought had the most significantly negative impact on quality of life. In part 2, they were given the list of symptoms perceived by patients to be most troublesome and were then required to enter a score that they thought was appropriate for each item according to the impact on quality of life. Forty-three clinicians responded, and each correctly identified one to three items selected by patients and included in the PDS. Severity of urgency was selected by 29 (67%) clinicians, and four (9%) rated it to be the most important. Incomplete emptying ...Continue Reading

References

Jan 1, 1988·British Journal of Cancer·M L SlevinW M Gregory
Apr 20, 2001·Medical Decision Making : an International Journal of the Society for Medical Decision Making·M E Suarez-AlmazorK Skeith
Oct 10, 2013·Colorectal Disease : the Official Journal of the Association of Coloproctology of Great Britain and Ireland·S BrandsborgS Laurberg

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Citations

Jun 22, 2018·Colorectal Disease : the Official Journal of the Association of Coloproctology of Great Britain and Ireland·G H T WorleyUNKNOWN Association of Coloproctology of Great Britain and Ireland (ACPGBI) Inflammatory Bowel Disease Clinical Advisory Group, comm
Dec 14, 2019·JGH Open : an Open Access Journal of Gastroenterology and Hepatology·Angela J KheraMichael A Kamm
Jan 26, 2021·JGH Open : an Open Access Journal of Gastroenterology and Hepatology·Angela J KheraMichael A Kamm
Apr 8, 2021·Colorectal Disease : the Official Journal of the Association of Coloproctology of Great Britain and Ireland·Karina E PedersenAmy L Lightner

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