Difficulties With Goals of the Dutch ICF Activity Inventory: Perceptions of Those With Retinitis Pigmentosa and of Those Who Support Them

Investigative Ophthalmology & Visual Science
Keziah LathamShahina Pardhan

Abstract

To provide a comprehensive overview of the perceived difficulties with visual activities and participation by those with retinitis pigmentosa (RP), and as perceived by those who support people with RP. Further, to examine the performance of the Dutch ICF Activity Inventory (D-AI) using Rasch analysis. Three hundred fifty people with RP and 75 supporters of people with RP provided demographic information and completed the D-AI at goal level (47 goals). Following removal of four goals, the D-AI behaved well in Rasch analysis, but with limitations to its unidimensionality. The most difficult goals for people with RP related to mobility and to work-related activities. Greater difficulty was associated with higher visual impairment registration status, use of mobility aids, and longer duration of visual impairment. For those with less severe visual loss, goals relating to communicating with people were relatively more difficult. In more severe loss, goals involving good central vision (e.g., dealing with correspondence) were relatively more difficult. The perceptions of supporters matched those of the people with RP relatively well, but with a tendency for supporters to overestimate the difficulty of goals, which related to administ...Continue Reading

Citations

Dec 30, 2016·Optometry and Vision Science : Official Publication of the American Academy of Optometry·Keziah LathamShahina Pardhan
Feb 19, 2019·Ophthalmic & Physiological Optics : the Journal of the British College of Ophthalmic Opticians (Optometrists)·Jane MacnaughtonMarta Vianya-Estopa
Mar 11, 2017·Ophthalmic & Physiological Optics : the Journal of the British College of Ophthalmic Opticians (Optometrists)·Hikmat SubhiMichael D Crossland
Jun 19, 2018·Frontiers in Neurology·Deborah ArmstrongDavid B Elliott
Jan 14, 2021·Journal of Patient-reported Outcomes·Ryan LangeJoshua R Ehrlich
Feb 4, 2021·Ophthalmic & Physiological Optics : the Journal of the British College of Ophthalmic Opticians (Optometrists)·Eugenie GolubovaJames S Wolffsohn
Aug 16, 2021·Ophthalmic & Physiological Optics : the Journal of the British College of Ophthalmic Opticians (Optometrists)·Nurbanu SomaniPeter M Allen
Sep 28, 2021·Acta Ophthalmologica·Xuan-Thanh-An NguyenCamiel J F Boon

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