Disclosure of diagnosis: to tell or not to tell?

Journal of Developmental and Behavioral Pediatrics : JDBP
Oana de Vinck-BaroodyMarilyn Augustyn

Abstract

Jimmy is an 8-year-old boy with hepatitis B, e antigen (HBeAg)-positive, HIV and hepatitis C negative, who was adopted from Vietnam when he was 5 years and has been followed in your primary care practice since that time. Before adoption, he lived in an orphanage, where he was placed soon after birth. Jimmy currently lives with his adoptive mother and grandparents. His adoptive father has amyotrophic lateral sclerosis and recently moved to a nursing home due to a need for more intensive care. Jimmy continues to see him regularly.Jimmy's mother presents today upset about a recent encounter with his hepatologist. During this visit, Jimmy's doctor was insistent that Jimmy should be told about his illness immediately. He felt that Jimmy "had a right to know" and that it was important for the protection of other children. Jimmy's family practices universal precautions and Jimmy is compliant with these safety measures. Jimmy's mother has chosen not to share his diagnosis with the school and in addition has not felt the time was right to disclose the diagnosis to Jimmy. He is asymptomatic, takes no medications, and is followed yearly by a hepatologist. His mother is concerned that Jimmy would have difficulty managing this information a...Continue Reading

Citations

Jul 23, 2015·International Braz J Urol : Official Journal of the Brazilian Society of Urology·Christina B ChingStacy T Tanaka

❮ Previous
Next ❯

Related Concepts

Related Feeds

Amyloid Lateral Sclerosis

Amyotrophic Lateral Sclerosis (ALS) is a progressive nervous system disease associated with the death of neurons that control voluntary muscles. Discover the latest research on ALS here.

Related Papers

Journal of Developmental and Behavioral Pediatrics : JDBP
Christina SakaiMarilyn Augustyn
The Australian & New Zealand Journal of Obstetrics & Gynaecology
A Graudins, M J Harris
Journal of Developmental and Behavioral Pediatrics : JDBP
Robert KederMarilyn Augustyn
Journal of Developmental and Behavioral Pediatrics : JDBP
Amy DrahotaM T Stein
© 2021 Meta ULC. All rights reserved