PMID: 16536961Mar 16, 2006Paper

Discovering the research priorities of people with diabetes in a multicultural community: a focus group study

The British Journal of General Practice : the Journal of the Royal College of General Practitioners
Ken BrownJoy Cummings-Jones

Abstract

Usually experts decide on which research is worthwhile, yet it is government policy to involve service users in research. There has been a lack of published research about involving patients from minority ethnic groups and people from deprived areas in setting research agendas. In this study we wanted to hear the voices of patients that are not often heard. To find out the research priorities of people with diabetes from an inner city community and compare these with current expert-led research priorities in diabetes. A qualitative study using a participatory approach with consumer groups. Primary care within inner city Nottingham, UK. Thirty-nine adult patients with diabetes with varying ethnic backgrounds recruited from three general practices. Six focus groups carried out in participants' preferred language, analysed using the constant comparative method. Nine main themes equating to research priorities were identified. Within these themes, information and awareness, service delivery and primary prevention of diabetes emerged as the main factors. There were no science-based topics and there was more emphasis on culturally influenced research questions, which differed from recent Department of Health priorities. There were se...Continue Reading

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