Disease-specific quality of life in children and adults with anorectal malformations.

Pediatric Surgery International
Caterina GranoCristiano Violani

Abstract

PURPOSE: The aim of the present study was to analyze disease-specific quality of life, as assessed by the Hirschsprung Disease/Anorectal Malformation Quality of Life (HAQL) questionnaire, in children and adults with anorectal malformations (ARM). METHODS: As much as 175 children and 62 adults who were members of the Italian Association for Anorectal Malformations were asked to complete the Italian version of the HAQL questionnaire developed for this study. For children under 16 years of age, mothers were asked to fill up the questionnaires. Patients were also asked to indentify their type of malformation from a list of eight choices. RESULTS: Most subscales of the Italian HAQL had acceptable reliability. Compared to children, adults reported significantly lower levels of QL on subscales measuring emotional functioning, body image, and physical symptoms. CONCLUSIONS: Longitudinal studies are needed to clarify whether these results can be attributed to improvements in surgical techniques that have contributed to improved QL in younger cohorts, or if, instead, quality of life in patients with ARM decreases over time. Intervention efforts should focus on bowel management and psychological treatment for ARM-related emotional and bod...Continue Reading

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Citations

Aug 3, 2013·Pediatric Surgery International·Caterina GranoC Violani
Feb 19, 2013·Journal of Pediatric Surgery·Marieke J WitvlietAlida F W van der Steeg
Jul 21, 2012·Journal of Pediatric Surgery·Caterina GranoCristiano Violani
Mar 8, 2013·Colorectal Disease : the Official Journal of the Association of Coloproctology of Great Britain and Ireland·S MantooP-A Lehur
Oct 19, 2013·Journal of Paediatrics and Child Health·Burcu Akin SariCan Başaklar
Oct 8, 2013·Journal of Pediatric Surgery·Pauline ClermidiJean-Benoit Hardouin
Apr 19, 2011·Journal of Pediatric Surgery·Caterina GranoCristiano Violani
May 12, 2018·Colorectal Disease : the Official Journal of the Association of Coloproctology of Great Britain and Ireland·C GranoC Violani
Jun 17, 2020·Journal of Pediatric Gastroenterology and Nutrition·Mariana FernandesCaterina Grano
Feb 8, 2019·Pediatric Surgery International·Helena WiganderMaria Öjmyr-Joelsson

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