Distilling the essence of appraisal: a mixed methods study of people with multiple sclerosis

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
Bruce D Rapkin, Carolyn E Schwartz

Abstract

This study aimed to identify the essential parts of the Quality of Life (QOL) Appraisal Profile that capture the most important differences in the ways that people with multiple sclerosis respond to patient-reported outcome (PRO) measures. This process will enable the eventual development of a more practical, less resource-intensive version of the QOL Appraisal Profile to facilitate its use in clinical research and practice. This is a secondary analysis of longitudinal PRO data (n = 859) of participants in the North American Research Committee on Multiple Sclerosis registry. Following the Rapkin and Schwartz (Health Qual Life Outcomes 2(1):14, 2004) model, we computed a "standard QOL model," and then multivariate analysis of variance (MANOVA) and discriminant function (DF) analysis to identify patterns of appraisal measures associated with group differences in response to each QOL outcome. The "standard QOL model" explains a moderate amount of variance (i.e., 15-17 %) in physical functioning and disease-specific disability, and very little variance in mental health functioning. The MANOVAs identified the appraisal variables that mattered by PRO, and the DF analysis included 10-16 of the 83 potential appraisal variables in two D...Continue Reading

References

May 29, 2003·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Jared B Jobe
Mar 17, 2004·Health and Quality of Life Outcomes·Bruce D Rapkin, Carolyn E Schwartz
May 25, 2006·The American Psychologist·Ed DienerChristie Napa Scollon
May 26, 2007·Multiple Sclerosis : Clinical and Laboratory Research·R A MarrieT Vollmer
Sep 22, 2007·Journal of Clinical Epidemiology·Peter M FayersUNKNOWN PRISM trial group
Aug 16, 2008·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Elsbeth F BloemMirjam A G Sprangers
Jun 23, 2009·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Ron D HaysDavid Cella
Oct 5, 2011·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Carolyn E Schwartz, Bruce D Rapkin
Mar 27, 2012·Archives of Physical Medicine and Rehabilitation·Carolyn E SchwartzTimothy Vollmer
May 15, 2012·Archives of Physical Medicine and Rehabilitation·Carolyn E SchwartzTimothy Vollmer
Aug 28, 2012·Medical Care·Sara AhmedUNKNOWN International Society for Quality of Life Research
Jul 16, 2013·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Carolyn E SchwartzMirjam A G Sprangers

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Citations

Oct 11, 2016·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Carolyn E SchwartzBruce D Rapkin
Mar 23, 2017·European Journal of Haematology·Lene Kongsgaard NielsenNiels Abildgaard
Jul 1, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Carolyn E SchwartzBruce D Rapkin
Feb 25, 2019·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Yuelin LiBernard H Bochner
Jul 20, 2019·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Bruce D Rapkin, Carolyn E Schwartz
Nov 12, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Bruce D RapkinCarolyn E Schwartz
Jun 9, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Bruce D RapkinCarolyn E Schwartz
Jan 25, 2020·Journal of Patient-reported Outcomes·Carolyn E SchwartzBruce D Rapkin
Oct 28, 2020·Journal of Patient-reported Outcomes·Carolyn E SchwartzBruce D Rapkin
Jun 18, 2019·Journal of the Neurological Sciences·Jonathan ZurawskiRohit Bakshi
Jul 11, 2021·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Carolyn E SchwartzJoel A Finkelstein
Jul 14, 2021·Journal of Patient-reported Outcomes·Carolyn E SchwartzBruce D Rapkin

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