Effectiveness of the Medtep Hemophilia online platform for adherence to prophylactic treatment in haemophilia patients: Results from a 1-year observational study

Haemophilia : the Official Journal of the World Federation of Hemophilia
Rubén Cuesta-BarriusoAna Torres-Ortuño

Abstract

Medtep Hemophilia platform is an online tool that allows patients with congenital coagulopathies to keep track of their daily condition-related events with the objective of ensuring successful adherence to therapy. To assess the effectiveness of Medtep Hemophilia in improving adherence to prophylactic treatment in haemophilia A and B patients in a 1-year prospective observational study, as well as its impact on the patient's disease status. Patients (>13 years old) received support material to familiarize themselves with Medtep Hemophilia. Adherence to treatment, quality of life (QoL) and illness perception were assessed. Values at baseline, 1, 6 and 12 months, and changes from baseline value were analysed. The Hemophilia Joint Health Score (HJHS) test was applied at baseline and study completion. Forty-six patients were enrolled (43 evaluable). After 1 year, 56.4% patients showed continued use of the platform (100% compliance) whereas 25.6% were inactive. Treatment adherence increased both significantly (P < .001) and progressively during the study. Similarly, improved QoL and illness perception were observed with respect to baseline in most of the questionnaire components (P < .05 after 12 months). A patient's age had no infl...Continue Reading

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Citations

Jun 16, 2018·Journal of Clinical Pharmacy and Therapeutics·J E Megías-VericatJ L Poveda-Andrés
May 24, 2019·Haemophilia : the Official Journal of the World Federation of Hemophilia·Emma RossnagelClaude Bartholomew
May 23, 2019·Haemophilia : the Official Journal of the World Federation of Hemophilia·Wolfgang MiesbachMike Makris
Sep 19, 2019·Haemophilia : the Official Journal of the World Federation of Hemophilia·Erna C van BalenRichard Sawatzky
Oct 22, 2020·Haemophilia : the Official Journal of the World Federation of Hemophilia·Andreas TiedeJohannes Oldenburg
Feb 8, 2021·Haemophilia : the Official Journal of the World Federation of Hemophilia·Alexandre Jorge Teixeira RibeiroAline Mizusaki Imoto
May 1, 2021·International Journal of Clinical Pharmacy·Martina BagoSilva Zupancic Salek
Aug 28, 2021·Frontiers in Medicine·Noemi DirzuCiprian Tomuleasa

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