Elements of Family-Centered Care in the Pediatric Intensive Care Unit: An Integrative Review

Journal of Hospice and Palliative Nursing : JHPN : the Official Journal of the Hospice and Palliative Nurses Association
Claire A RichardsArdith Z Doorenbos

Abstract

This paper reports result from a systematic search and thematic analysis of qualitative literature to identify key issues related to family-centered care, behaviors, and communication skills that support the parental role and improve patient and family outcomes in the PICU. Five themes were identified: 1) sharing information; 2) hearing parental voices; 3) making decisions for or with parents; 4) negotiating roles; and 5) individualizing communication. These themes highlight several gaps between how parents want to be involved and perceive clinicians engage them in the care of their child. Parental preferences for involvement differ in the domains of information sharing, decision making, and power-sharing across a spectrum of parental roles from parents as care provider to care recipient. The PICU setting may place clinicians in a double bind trying to both engage families and protect them from distress. Asking families of critically ill children about their preferences for participation across these domains may improve clinician-family relationships.

References

Mar 4, 1994·Children's Health Care : Journal of the Association for the Care of Children's Health·C M TrivetteL Wall
May 13, 1999·Journal of Advanced Nursing·K Hutchfield
Jan 20, 2000·Issues in Comprehensive Pediatric Nursing·P S TomlinsonB L Harbaugh
Nov 14, 2000·Archives of Pediatrics & Adolescent Medicine·D A BartelJ G Joseph
May 25, 2001·Critical Care Medicine·J P MarcinU E Ruttimann
Nov 9, 2004·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Andrew BalluffiMark Helfaer
Jan 8, 2005·Journal of Pediatric Nursing·Patricia S Tomlinson, Bonnie Lee Harbaugh
Nov 5, 2005·Journal of Advanced Nursing·Robin Whittemore, Kathleen Knafl
Dec 31, 2005·Neonatal Network : NN·Sheila K Malusky
Feb 9, 2006·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Franco A CarnevaleJacques Lacroix
Apr 29, 2008·Clinical Pediatric Emergency Medicine·Kelly Nicole Michelson, David M Steinhorn
May 3, 2008·Pediatrics·Marcia Levetown, UNKNOWN American Academy of Pediatrics Committee on Bioethics
May 27, 2008·Pediatric Clinics of North America·Gillian Colville
Nov 21, 2008·Intensive & Critical Care Nursing : the Official Journal of the British Association of Critical Care Nurses·Gillian ColvilleJane Noyes
Jun 27, 2009·The Journal of Pediatrics·Melissa A CameronMarilyn C Morris
Dec 19, 2009·Critical Care Nursing Quarterly·Angela FrazierNancy A Warren
Nov 9, 2010·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Gladys McPhersonKathy Rasmussen
Jan 29, 2011·Journal of Advanced Nursing·Gitte Mikkelsen, Kirsten Frederiksen
Feb 15, 2011·Maternal and Child Health Journal·Dennis Z KuoJohn M Neff
Apr 12, 2011·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Kelly Nicole MichelsonJoel Frader
Apr 23, 2011·Intensive & Critical Care Nursing : the Official Journal of the British Association of Critical Care Nurses·Kaitlin E AmesSophie Baillargeon
Nov 10, 2011·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Susan Eggly, Kathleen L Meert
Dec 27, 2011·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Franco A CarnevalePaolo Biban
Feb 7, 2012·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Mary Ellen MacdonaldS Robin Cohen
Apr 13, 2012·The American Journal of Hospice & Palliative Care·Mary Jo GilmerBrian S Carter
Jun 19, 2012·International Journal of Nursing Studies·Laila Akbar LadakFahad Javaid Siddiqui
Jul 14, 2012·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Sarah A McGrawElaine C Meyer
Jul 25, 2012·Journal of Nursing Management·Lizeth RoetsRiette Nel
Nov 1, 2012·The Journal of Perinatal & Neonatal Nursing·Vincent C SmithLisa Y Shen
Dec 20, 2012·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Kelly Nicole MichelsonJoel Frader
Mar 30, 2013·Critical Care Clinics·Nana E Coleman, Steven Pon
May 4, 2013·Pediatric Clinics of North America·Kathleen L MeertSusan Eggly
May 4, 2013·Pediatric Clinics of North America·Lynne Merk, Rick Merk
Oct 29, 2013·International Journal of Palliative Nursing·Gilda M C Abib El HalalPedro C R Garcia
Jan 8, 2014·Critical Care Medicine·Alisa C Van CleaveDavid C Magnus
Mar 4, 2014·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Tessie W OctoberPamela S Hinds
Nov 5, 2014·American Journal of Critical Care : an Official Publication, American Association of Critical-Care Nurses·Sarah Smith McAlvin, Aimee Carew-Lyons

❮ Previous
Next ❯

Citations

Nov 29, 2017·The American Journal of Hospice & Palliative Care·Claire A RichardsArdith Z Doorenbos
Jul 2, 2019·The American Journal of Hospice & Palliative Care·Masayuki IwataArdith Z Doorenbos
Jan 5, 2019·Journal of Hospice and Palliative Nursing : JHPN : the Official Journal of the Hospice and Palliative Nurses Association·Joan Jody Ramer ChrastekTisha Moore
Oct 11, 2017·The American Journal of Hospice & Palliative Care·Claire A RichardsArdith Z Doorenbos
Oct 24, 2020·Nursing in Critical Care·Malorie De MonteFrederic V Valla
Jan 29, 2021·Nursing in Critical Care·Josef Trapani, Nikolaos Efstathiou
Jul 15, 2021·Critical Care Medicine·Erwin IstaUNKNOWN International PARK-PICU Investigators

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies
Tessie W OctoberPamela S Hinds
Archives of Pediatrics & Adolescent Medicine
Kelly Nicole MichelsonJoel Frader
© 2022 Meta ULC. All rights reserved