Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach

Collegian : Journal of the Royal College of Nursing, Australia
Claudia VirdunPatricia M Davidson

Abstract

Models of palliative care need to address the unmet needs of children, young people and families. To undertake an integrative review to identify the key elements of optimal paediatric palliative care from the perspectives of children and young people with palliative care needs and their parents. Electronic databases including CINAHL, Medline, PsycINFO and AMED searched using combined terms for palliative care, service models and children along with reference lists of included studies. Peer reviewed empirical studies reporting on evaluation of paediatric palliative care by children and young people with palliative care needs (0-19 years), or their families, published in English, between 2000 and 2013. The views of health professionals and grey literature were excluded. Quality appraisal completed by two researchers, consensus reached following discussion. Data extracted by two researchers, entered into an electronic proforma and synthesised using a narrative approach. Seven studies were identified of which two were quantitative, one was qualitative and four were mixed methods. Synthesis highlighted the need for tailored support enabling flexibility in care, with specific reference to location of care and access to psychosocial s...Continue Reading

Citations

Apr 27, 2018·Journal for Specialists in Pediatric Nursing : JSPN·Kim E Whitmore, Julia Snethen
Jul 22, 2019·BMJ Supportive & Palliative Care·Georgina ConstantinouGurch Randhawa
Mar 23, 2017·Journal of Advanced Nursing·Katri EskolaEva Cignacco
Dec 13, 2018·Journal of Palliative Medicine·Poh Heng ChongSean Hughes
Nov 20, 2020·Archives of Disease in Childhood·Johanna TaylorJan Aldridge
Feb 3, 2020·Medical Science Educator·Kan Yin WongCheuk Hei Cheng

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