Eliciting patient preferences, priorities and trade-offs for outcomes following kidney transplantation: a pilot best-worst scaling survey

BMJ Open
Martin HowellKirsten Howard

Abstract

Eliciting preferences and trade-offs that patients may make to achieve important outcomes, can assist in developing patient-centred research and care. The pilot study aimed to test the feasibility of a case 2 best-worst scaling survey (BWS) to elicit recipient with kidney transplantation preferences after transplantation. Preferences for graft survival and dying, cancer, cardiovascular disease, diabetes, infection and side effects (gastrointestinal, weight-gain and appearance) were assessed in recipients with transplantation using a BWS (20 scenarios of nine outcomes). Participants chose 'best' and 'worst' outcomes. Responses were analysed using a multinomial logit model. Selected participants were interviewed. Attribute coefficients and survey completion error rates. 81 recipients with transplantation were approached, and 39 (48%), mean age 50.5 years, completed the BWS. 4 (10%) surveys were invalid with major errors and of 35 remaining, 7 of 1400 (0.5%) choices were missing. -23 (59%) took >20 min to complete the survey. 1 was unable to finish, and 1 did not understand the survey. 2 (5%) found it very hard and 14 (35%) moderately hard. Most attribute coefficients were significant (p<0.05) and showed face validity. Graft survi...Continue Reading

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Citations

Feb 6, 2017·Clinical Journal of the American Society of Nephrology : CJASN·Laura J JamesAllison Tong
May 4, 2017·Journal of Palliative Medicine·Ann M O'HareAlvin H Moss
Aug 7, 2019·Transplant International : Official Journal of the European Society for Organ Transplantation·Wai H LimGermaine Wong
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Jul 18, 2021·Journal of Clinical Epidemiology·Ahmad Shahabeddin PariziPaul Fm Krabbe

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