Emergency preparedness of families of children with developmental disabilities: what public health and safety emergency planners need to know

Journal of Emergency Management : JEM
Susan B Wolf-FordhamCharles D Hamad

Abstract

To assess the emergency preparedness knowledge, behaviors, and training needs of families of children with developmental disabilities (DD). An online survey. A sample of 314 self-selecting US parents/guardians of children with DD, aged birth-21 years. 1) Preparedness self-assessment; 2) self-report regarding the extent to which families followed 11 specific preparedness action steps derived from publicly available preparedness guides; and 3) parent training and support needs. Although most participants assessed themselves to be somewhat to moderately well prepared, even those who reported being "very well prepared" had taken fewer than half of 11 recommended action steps. Most participants expressed a need for preparedness support; virtually all the respondents felt that training was either important or very important. Children with disabilities are known to be particularly vulnerable to negative disaster impacts. Overall, parents in this study appeared under-prepared to meet family disaster needs, although they recognized its importance. The results suggest opportunities and methods for public health and safety planning, education and outreach to parents of children with DD who would benefit from targeted training such as info...Continue Reading

Citations

Jun 15, 2018·Journal of Pediatric Gastroenterology and Nutrition·Khadija T ToorCatherine J Goodhue
Aug 21, 2018·Health Promotion Practice·Judy KrugerDana L Pitts
Apr 14, 2017·Current Psychiatry Reports·Laura M StoughDonghyun Kang
Jan 24, 2019·Disability and Rehabilitation·Adi Finkelstein, Ilan Finkelstein
Nov 21, 2020·Disaster Medicine and Public Health Preparedness·Tara N HeageleDanita M Alfred
Mar 7, 2021·International Journal of Environmental Research and Public Health·Hisao NakaiMasao Yamasaki
May 22, 2021·Research in Developmental Disabilities·Elizabeth McAdams Ducy, Laura M Stough

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