Emerging Methodologies in Pediatric Palliative Care Research: Six Case Studies

Children
Katherine E NelsonChris Feudtner

Abstract

Given the broad focus of pediatric palliative care (PPC) on the physical, emotional, and spiritual needs of children with potentially life-limiting illnesses and their families, PPC research requires creative methodological approaches. This manuscript, written by experienced PPC researchers, describes issues encountered in our own areas of research and the novel methods we have identified to target them. Specifically, we discuss potential approaches to: assessing symptoms among nonverbal children, evaluating medical interventions, identifying and treating problems related to polypharmacy, addressing missing data in longitudinal studies, evaluating longer-term efficacy of PPC interventions, and monitoring for inequities in PPC service delivery.

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Citations

Feb 21, 2019·European Journal of Physical and Rehabilitation Medicine·Patricia Rico-MenaJavier Güeita-Rodríguez
Nov 30, 2019·Revista paulista de pediatria : orgão oficial da Sociedade de Pediatria de São Paulo·Caroline Gouveia Buff PassoneClovis Artur Silva

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