Empowering self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Impacts and their underlying mechanisms

PloS One
Karen BunningSally Hartley

Abstract

Bringing up a child with disabilities in a low-income setting is challenged by inadequate resources, limited psycho-social support and poverty. Not surprisingly, many caregivers experience fatigue, distress and isolation. To address and investigate these issues, action was taken to set up twenty self-help groups focusing on caregiver empowerment. A realist evaluation design was adopted to evaluate impacts associated with the self-help process and to identify mechanisms determining the outcomes. Monthly monitoring visits were conducted to the groups during a ten-month set-up period, at the end of which eleven active groups remained, nine having dissolved due to disputes, corruption and extreme environmental conditions. A facilitated intervention was delivered to the active groups (N = 154) over a six-month period. The members were guided to review and discuss topics such as economic empowerment, personal situation, peer support, community inclusion, access to health and education. Evaluation employed mixed methods using questionnaires (n = 75) and semi-structured interviews (n = 36) pre- and post-intervention. At baseline, the burden of caregiving was characterised by aloneness, challenges, stigma and discrimination. Post-interv...Continue Reading

References

Oct 1, 1988·American Journal of Community Psychology·M A Zimmerman, J Rappaport
Oct 1, 1995·American Journal of Community Psychology·D D Perkins, M A Zimmerman
Oct 1, 1995·American Journal of Community Psychology·M A Zimmerman
Dec 7, 1983·Prevention in Human Services·C H Kieffer
Jul 28, 2005·International Journal of Rehabilitation Research. Internationale Zeitschrift Für Rehabilitationsforschung. Revue Internationale De Recherches De Réadaptation·Harry FinkenflügelRobbert Huijsman
Sep 1, 2007·International Journal of Rehabilitation Research. Internationale Zeitschrift Für Rehabilitationsforschung. Revue Internationale De Recherches De Réadaptation·Tal-hatu K Hamzat, Eluemuno L Mordi
Jul 22, 2010·Child: Care, Health and Development·J K GonaS Hartley
Jun 16, 2011·Journal of Health and Social Behavior·Peggy A Thoits
Mar 23, 2012·International Journal of Mental Health Systems·Alex CohenVikram Patel
Jan 29, 2013·Disability and Rehabilitation·Judith Anne McKenzieColleen Adnams
Jul 19, 2013·Epilepsy & Behavior : E&B·Glória Maria Almeida Souza TedrusPedro Henrique Magalhães Mendes
Jun 21, 2014·Disability and Health Journal·Aaron ThrushAdnan Hyder
Oct 1, 2011·International Journal of Telerehabilitation·Katherine D Seelman
Oct 21, 2016·Child: Care, Health and Development·C Masulani-MwaleM Gladstone
Aug 13, 2013·African Journal of Disability·Arne H Eide, Benedicte Ingstad
Nov 19, 2017·BMC Health Services Research·R VergunstM Schneider
Dec 22, 2017·PloS One·Lena Morgon BanksSarah Polack
May 10, 2018·BMC International Health and Human Rights·Joseph K GonaKaren Bunning
Dec 12, 2018·Lancet· The Lancet
Jan 1, 2019·Development Policy Review : the Journal of the Overseas Development Institute·Mary Kay GugertyC Leigh Anderson

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Citations

Mar 9, 2021·Child: Care, Health and Development·Helen M Bourke-TaylorKahli S Joyce

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