Empowerment and advocacy: reflections on action research with Bangladeshi and Pakistani families who have children with severe disabilities

Health & Social Care in the Community
Qulsom FazilPaul Bywaters

Abstract

The concepts of empowerment and advocacy, and how they impinge on power relationships for service providers working with black and Asian communities, are explored through the findings of a 20-month project carried out between 2000 and 2001 with 19 Pakistani and Bangladeshi families who have children with severe disabilities in Birmingham. This action research project evaluated an advocacy project designed to improve the quality of life for Pakistani and Bangladeshi families with at least one child with severe disabilities. The objectives included improving access to resources, services, information and support in ways which were non-stigmatising, and which were sensitive to the particular needs of the children and their carers. The present paper discusses four main themes: (1) advocacy and empowerment in practice; (2) issues of the efficacy of advocacy and of consultation within advocacy; (3) individual empowerment versus the families' needs; and (4) cultural and gender issues which emerged from the analysis of the study. The authors identify features of empowerment which must be addressed in advocacy services which are sensitive to ethnic differences. These issues must be addressed if services are to reap their potential to ma...Continue Reading

References

Mar 1, 1995·Health Care for Women International·D B Preston
Aug 7, 2002·Clinical Nursing Research·P Hayes

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Citations

Jul 1, 2006·International Journal for Equity in Health·Hammad Raza SyedNora L Ahlberg
May 9, 2006·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Stephen AbbottAnne Lanceley
Apr 4, 2008·Health & Social Care in the Community·E J CrootN Mathers
Aug 24, 2010·Nursing & Health Sciences·Rie WakimizuAkira Yoneyama
Apr 18, 2009·Nursing Ethics·Heli VaartioPauli Puukka
Oct 27, 2020·Behavior Analysis in Practice·Anita Li

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