End of life care for glioblastoma patients at a large academic cancer center

Journal of Neuro-oncology
Kamini E KuchinadThomas J Smith

Abstract

Glioblastoma (GBM) is a universally fatal disease, complicated by significant cognitive and physical disabilities, inherent to the disease course. The purpose of this study was to retrospectively analyze end-of-life care for GBM patients at an academic center and compare utilization of these services to national quality of care guidelines, with the goal of identifying opportunities to improve end-of-life care. Single center retrospective cohort study of GBM patients at Johns Hopkins Hospital (JHH) between 2009 and 2014, using electronic medical records and hospice records. Comprehensive medical record review of 100 randomly selected patients with GBM, who were actively treated at JHH. Secondary analysis of all JHH GBM patients (n = 45) who received hospice care at Gilchrist Services, our largest provider, during this time period. Of 100 patients, 76 were referred to hospice. Despite the poor survival and changes in mental capacity associated with this disease, only 40% of individuals had documentation of code status and only 17% had any documentation of advance directives (ADs). None had documentation by a health care provider of a formal symptom, psychosocial, or spiritual assessment at greater than 50% of clinic visits. Only ...Continue Reading

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Citations

Sep 13, 2017·Journal of Oncology Practice·Marie A BakitasThomas J Smith
Jun 1, 2017·American Society of Clinical Oncology Educational Book·Cardinale B SmithThomas J Smith
Mar 13, 2020·Journal of the National Cancer Institute·Elie K MehannaAyal A Aizer
Jan 29, 2021·Japanese Journal of Clinical Oncology·Nobuyasu AwanoHideo Kunitoh
Jun 8, 2021·Notfall & Rettungsmedizin·Spyros D MentzelopoulosLeo Bossaert
Sep 12, 2018·Journal of Pain and Symptom Management·Erqi L PollomRebecca A Aslakson

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