End-of-life decision making by family caregivers of persons with advanced dementia: A literature review of decision aids

SAGE Open Medicine
Bo XieKolina S Koltai

Abstract

To investigate existing knowledge in the literature about end-of-life decision making by family caregivers of persons with dementia, focusing on decision aids for caregivers of persons with advanced dementia, and to identify gaps in the literature that can guide future research. A literature review through systematic searches in PubMed, CINAHL Plus with Full Text, and PsycINFO was conducted in February 2018; publications with full text in English and published in the past 10 years were selected in multiple steps. The final sample included five decision aids with predominantly Caucasian participants; three of them had control groups, and three used audiovisual technology in presenting the intervention materials. No other technology was used in any intervention. Existing interventions lacked tailoring of information to caregivers' preferences for different types and amounts of information necessary to make decisions consistent with patients' values. Research is needed in exploring the use of technology in decision aids that could provide tailored information to facilitate caregivers' decision making. More diverse samples are needed.

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Citations

Oct 28, 2019·International Psychogeriatrics·Kyle S Page, Nabeel T Yehyawi
Nov 29, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Andrew Geddis-ReganRichard Thomson
Jan 10, 2021·Behavioral Sciences·Ines TestoniMichael Alexander Wieser
Jul 27, 2021·Frontiers in Neurology·Stefanie Danielle Piña-EscuderoErika Mariana Longoria-Ibarrola
Jan 20, 2022·The American Journal of Hospice & Palliative Care·Karen Elizabeth SchlagLiam Fry

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