End of life of patients treated with haemodialysis as narrated by their close relatives

Scandinavian Journal of Caring Sciences
Lena AxelssonSissel Andreassen Gleissman

Abstract

The study aimed to describe end of life for patients treated with maintenance haemodialysis as narrated by their close relatives. Many patients undergoing haemodialysis are older, have several comorbidities and underestimated symptoms and are in their last year of life. To improve care, we need to know more about their end-of-life situation. Qualitative and descriptive. Qualitative retrospective interviews were conducted with 14 close relatives of deceased haemodialysis patients (3-13 months after death). Data were analysed using qualitative content analysis. The study is ethically approved. In the last months, a gradual deterioration in health with acute episodes necessitating hospital admissions was described. This involved diminishing living space and expressions of dejection, but also of joy. Three patterns emerged in the last weeks: uncertain anticipation of death as life fades away; awaiting death after haemodialysis withdrawal; and sudden but not unexpected death following intensive care. Findings show complexities of decisions on haemodialysis withdrawal. Different end-of-life patterns all involved increasingly complex care needs and existential issues. Findings show a need for earlier care planning. The identification ...Continue Reading

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Citations

Sep 25, 2017·Journal of Pain and Symptom Management·Lena AxelssonKristofer Årestedt

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