Engaging Latina breast cancer survivors in research: building a social network research registry

Translational Behavioral Medicine
Alejandra Hurtado-de-MendozaVanessa B Sheppard

Abstract

Disparities persist in breast cancer outcomes between Latina survivors and non-Hispanic Whites. Identifying methods to ensure that Latinas participate in and benefit from translational behavioral medicine research is important to reduce disparities. We developed a "Social Network Research Registry" to enhance Latina survivors' engagement in research and explored the social networks and research/cancer organization participation in this population. We initially recruited 30 Latina breast cancer survivors ("seeds") from community organizations and identified other survivors through snowball sampling. Guided by Social Network Analysis, we assessed the structural (e.g., size) and functional (e.g., social support) characteristics of the network, willingness to join the registry, prior research participation, involvement in cancer organizations, and interest in different types of research and roles in research. The resulting network size was 98, including 53 women who enrolled in the study and 45 who were listed in the network but did not enroll. All enrolled participants (N = 53) agreed to be part of the registry. We identified 15 participants who occupied strategic positions as hubs and/or bridges. Women who were currently involved...Continue Reading

References

Jan 1, 1991·Social Science & Medicine·C D Sherbourne, A L Stewart
Sep 6, 2000·Social Science & Medicine·L F BerkmanT E Seeman
Mar 1, 2006·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Candyce H KroenkeIchiro Kawachi
Mar 31, 2006·American Journal of Public Health·Laura M BeskowMorris Weinberger
Nov 10, 2006·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·John Z Ayanian, Paul B Jacobsen
Apr 18, 2008·Community Genetics·Deborah J BowenCarol Kasten-Sportes
Apr 18, 2008·Community Genetics·Rosalina D JamesUNKNOWN Health Disparities Working Group
Sep 26, 2009·Journal of Immigrant and Minority Health·Michele G ShedlinAngela Martinez
Feb 12, 2010·American Journal of Public Health·Howard K KohK Viswanath
Jun 29, 2010·Social Networks·Thomas W Valente, Kayo Fujimoto
Jul 7, 2012·Science·Thomas W Valente
Jan 24, 2013·Contemporary Clinical Trials·Melissa A GreenGiselle M Corbie-Smith
May 10, 2013·Breast Cancer Research and Treatment·Candyce H KroenkeLawrence H Kushi
Feb 13, 2014·Social Science & Medicine·John A SchneiderEdward O Laumann
Dec 17, 2015·PLoS Medicine·Sam S OhEsteban G Burchard
Jan 9, 2016·CA: a Cancer Journal for Clinicians·Rebecca L SiegelAhmedin Jemal
Jan 1, 2014·Network Science·Jacob C Fisher, M Giovanna Merli
Oct 3, 2017·Preventive Medicine Reports·Dannielle E KelleyBrian G Southwell

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Citations

Jun 28, 2019·Current Opinion in Supportive and Palliative Care·Eric C Jones, Martin Storksdieck
Dec 5, 2019·International Journal of Environmental Research and Public Health·Alejandra Hurtado-de-MendozaVanessa B Sheppard
Nov 23, 2020·Journal of Genetic Counseling·Alejandra Hurtado-de-MendozaVanessa B Sheppard
Sep 9, 2019··Tian-Shyug LeeDer-Chen Chang

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