Engaging "seldom heard" groups in research and intervention development: Offender mental health.

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
Charlie TaylorCath Quinn

Abstract

People subject to the criminal justice system often have substantially different life-experiences from the general population. Patient and public involvement (PPI) of "seldom heard" groups provides valuable experiential knowledge, enhancing research. To share our jointly developed techniques to ensure the meaningful engagement and contribution of people with lived experience of the criminal justice system (PWLECJS) in research, trial science, intervention theory development and dissemination. Commitment to adequate financial resources, appropriate staff skills and adequate time were combined with previous learning. PWLECJS were approached through local community organizations. A group was established and met fortnightly for ten months in an unthreatening environment and had a rolling membership. Ongoing engagement was promoted by the group taking responsibility for the rules, interactive and accessible activities, feeding back tangible impacts, ongoing contact, building a work ethic, joint celebrations, sessions with individual academic researchers and pro-actively managed endings. The Peer Researchers contributed to study documents, training academic researchers, research data collection and analysis, intervention delivery and...Continue Reading

References

May 29, 2002·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Eva ElliottUrsula Harries
Apr 24, 2003·Journal of Clinical Nursing·Sian Maslin-Prothero
Dec 13, 2006·International Journal of Nursing Studies·Elizabeth SmithPeter Beresford
Sep 27, 2013·The New England Journal of Medicine·Curtis J Donskey
Feb 27, 2014·BMC Health Services Research·Juan Pablo DomecqMohammad Hassan Murad
Jan 1, 2009·International Journal of Prisoner Health·R Elwood MartinT G Hislop
Apr 27, 2016·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Melissa J ArmstrongC Daniel Mullins
Oct 25, 2017·Research Involvement and Engagement·Kristina StaleyClaire Nolan

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Citations

Mar 28, 2019·Research Involvement and Engagement·Kristina Staley, Duncan Barron
May 26, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Felicity ThomasHazel Stuteley
Jun 22, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Tamara L McCarronMaria Santana
Jul 29, 2021·Research Involvement and Engagement·Joanna ReynoldsRuth Beresford

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