Enhancing the experience of carers in the chemotherapy outpatient setting: an exploratory randomised controlled trial to test impact, acceptability and feasibility of a complex intervention co-designed by carers and staff

Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer
V TsianakasE Ream

Abstract

Supporting someone through chemotherapy can be emotionally and physically demanding. However, research has yet to establish the type of support carers require or the best way to provide this. This study tested the feasibility and acceptability of a complex intervention for carers that was co-designed by staff and carers of patients starting chemotherapy. Forty-seven carers were recruited, randomised between the intervention (n = 24) and control (n = 23) groups. A questionnaire was completed pre- and post-intervention measuring knowledge of chemotherapy and its side effects, experience of care, satisfaction with outpatient services, coping and emotional wellbeing. The intervention process was evaluated by carers and healthcare professionals (HCPs) in focus groups. Recruitment to the study was unproblematic and attrition from it was low, suggesting the intervention and study processes were acceptable to patients and carers. Carers in receipt of the 'Take Care' intervention reported statistically significantly better understanding of symptoms and side effects and their information needs being more frequently met than carers in the control. Confidence in coping improved between baseline and follow-up for the intervention group and ...Continue Reading

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Citations

Mar 21, 2017·CA: a Cancer Journal for Clinicians·Betty Ferrell, Elaine Wittenberg
Jan 27, 2017·Scandinavian Journal of Caring Sciences·Heather McKenzieJo River
Aug 24, 2018·Journal of the American Geriatrics Society·Kamal C WagleNoll L Campbell
Jun 18, 2019·The Cochrane Database of Systematic Reviews·Charlene J TreanorMichael Donnelly
Jun 10, 2019·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Line LundMogens Groenvold
May 30, 2019·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Gráinne C BradyJustin W G Roe
May 16, 2019·PloS One·Lene Østergaard JepsenMette Terp Høybye
Jul 14, 2017·BMJ Open·David ClarkeUNKNOWN Collaborative Rehabilitation Environments in Acute Stroke (CREATE) team
Apr 9, 2018·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Douglas L HillChris Feudtner
Nov 27, 2020·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Emma ReamCatherine Oakley
Mar 13, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Jenelle LoeligerJane Stewart

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