Ethical dilemmas concerning autonomy when persons with dementia wish to live at home: a qualitative, hermeneutic study

BMC Health Services Research
Kari Lislerud SmebyeKnut Engedal

Abstract

Caring for people with dementia living in their own homes is a challenging care issue that raises ethical dilemmas of how to balance autonomy with their safety and well-being. The theoretical framework for this study consisted of the concepts of autonomy, beneficence, non-maleficence, paternalism and from the ethics of care. The aim of this study was to explore ethical dilemmas concerning autonomy that were identified when persons with dementia wished to live at home. This Norwegian study had a qualitative, hermeneutic design and was based on nine cases. Each case consisted of of a triad: the person with dementia, the family carer and the professional caregiver. Inclusion criteria for the persons with dementia were: (1) 67 years or older (2) diagnosed with dementia (3) Clinical Dementia Rating score 2 i.e. dementia of moderate degree (4) able to communicate verbally and (5) expressed a wish to live at home. The family carers and professional caregivers registered in the patients' records were included in the study. An interview guide was used in interviews with family carers and professional caregivers. Field notes were written after participant observation of interactions between persons with dementia and professional caregive...Continue Reading

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Citations

Dec 3, 2016·Journal of Alzheimer's Disease : JAD·Ivayla ApostolovaRalph Buchert
Dec 9, 2017·International Journal of Older People Nursing·Joan Ostaszkiewicz
Dec 8, 2017·Medicine, Health Care, and Philosophy·Anders Nordgren
Jul 28, 2020·Journal of Alzheimer's Disease : JAD·Alex McKeownIlina Singh
Dec 19, 2020·Nursing Ethics·Anne Kari Tolo HeggestadElisabeth Gjerberg
Dec 8, 2021·Nursing Ethics·Vincent Ra MoermansJan Ph Hamers

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