Ethical issues in participatory action research

Scandinavian Journal of Caring Sciences
Päivi LöfmanAnna-Maija Pietilä

Abstract

The purpose of this article is to describe the ethical issues arising out of participatory action research (PAR), on the basis of both an empirical study and the research literature, and to discuss how to deal with these issues. The data consist of the experiences and results of three phases of PAR relating to orthopaedic patients with rheumatoid arthritis (RA) and the analysis of 20 articles on the ethics of action research. As a result, the following ethical issues and the ways to treat them were discussed: informed consent, confidentiality and anonymity, protecting an individual from harm, the role of the researcher, the location of 'power' in PAR, and the ownership of the research. The flexibility of PAR in use and its main features are also related to the decisions made and actions taken in response to ethical issues. It is particularly important in PAR to proceed according to the participants, and to involve them from the beginning of the process, in order to insure the equal balance of power between participants and researcher.

References

Apr 12, 1990·Philosophical Transactions of the Royal Society of London. Series B, Biological Sciences·J Reason
Nov 1, 1990·Journal of Advanced Nursing·S J Redfern, I J Norman
Jul 1, 1990·Journal of Advanced Nursing·J Sheehan
Sep 1, 1995·Nursing Ethics·I Holloway, S Wheeler
Jan 1, 1994·Journal of Clinical Nursing·L East, J Robinson
Jun 1, 1993·Journal of Advanced Nursing·A Titchen, A Binnie
Jan 1, 1996·Journal of Advanced Nursing·E Hart, M Bond
Sep 1, 1996·Journal of Advanced Nursing·A Robinson, M Miller
Jan 1, 1997·Journal of Advanced Nursing·M Johnson
Mar 1, 1997·Nursing Outlook·K L BredaP Lyon
Dec 17, 1997·ANS. Advances in Nursing Science·V Soltis-Jarrett
Jun 5, 1998·Annual Review of Public Health·B A IsraelA B Becker
Sep 28, 1998·International Journal of Nursing Practice·D Keatinge, C Scarfe
Sep 4, 1999·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·S J Neill
Dec 8, 2000·Age and Ageing·J Meyer
Apr 20, 2001·Journal of Nursing Management·T G Badger
Jun 26, 2001·Reproductive Health Matters·S Salinas MulderM Castro Condori
Dec 12, 2001·Journal of Advanced Nursing·R Harris, E Dyson
Apr 2, 1996·International Journal of Palliative Nursing·Christopher Bailey

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Citations

Aug 22, 2008·International Journal of Nursing Practice·Päivi LöfmanAnna-Maija Pietilä
Mar 15, 2013·Journal of Empirical Research on Human Research Ethics : JERHRE·Colleen M DavisonDenise MacFarlane
Oct 19, 2010·The American Journal of Orthopsychiatry·B Heidi EllisHoward J Cabral
Oct 17, 2007·Transcultural Psychiatry·B Heidi EllisAbdirahman Nur
Apr 1, 2011·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Antonia J Beringer, Margaret E Fletcher
Mar 23, 2007·Clinical Child Psychology and Psychiatry·Maryam Kia-Keating, B Heidi Ellis
Nov 4, 2016·Clinical Nursing Research·Christina Juthberg, Eva Ericson-Lidman
Sep 14, 2017·Nursing Ethics·Rini Rachmawaty
Dec 14, 2017·Qualitative Health Research·Elena WilsonVirginia Dickson-Swift
Dec 14, 2018·Global Qualitative Nursing Research·Linda NyholmLisbet Nyström
Mar 20, 2021·Health Research Policy and Systems·Christine E LaustsenMaria Haak
Jun 15, 2021·Journal of Evaluation in Clinical Practice·Gurpreet ReenEirini Oikonomou

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